Town turns or­ange in sup­port of Ol­lie’s Army

Macclesfield Express - - MACCLESFIELD PEOPLE -

FAM­ILY and friends of Ol­lie and Amelia Car­roll, who have been di­ag­nosed with a fa­tal ge­netic dis­ease, took to the streets of Poyn­ton for Bat­tens Dis­ease Aware­ness Day on Fri­day.

They also man­aged to raise £500 for the Batten Dis­ease Fam­ily As­so­ci­a­tion char­ity through a com­bi­na­tion of £181.66 col­lected on the street, a do­na­tion of £205 and £97 in tips from gen­er­ous staff at the Farm­ers Arms pub. ●● A CARE home is open­ing its doors to visi­tors as part of an open day event.

Park­lands Care Home, based at Poyn­ton Civic Cen­tre will be open all day for the spe­cial

The con­di­tion is de­gen­er­a­tive and there is no cure.

Ol­lie, aged four, and Amelia, two, from Poyn­ton, will lose their speech, mo­bil­ity and eye­sight as they get older and are un­likely to sur­vive past the age of 12.

Ol­lie and Amelia’s aunt, Emily Scarf, 24, who now lives in Of­fer­ton but is orig­i­nally from Poyn­ton, said: “We didn’t ex­pect to raise any money at all, we just wanted to raise aware­ness so we were re­ally happy.

“Ol­lie and Amelia missed it as they are away on hol­i­day so I think they’ll be re­ally pleased when they get back.

“The amount of peo­ple who stopped and asked what the day was about was great.

“Es­tate agents Gas­coigne Hal­man even put Ol­lie’s Army posters in the win­dow in­stead of houses – it was amaz­ing.”

Or­ange rib­bons were at­tached to trees and lamp­posts the night Visi­tors can tour the home and take part in a range of ac­tiv­i­ties, with a se­lec­tion of cakes, scones and tea on of­fer be­tween 2pm and 4pm.

Na­tional Care Home Open Day is an an­nual be­fore and letters were given to shops to in­form them of the day.

Par­ents Lucy and Mike have launched a so­cial media cam­paign, ‘Ol­lie’s Army’, to raise aware­ness of the con­di­tion, which only five or six chil­dren in the UK are di­ag­nosed with each year. They have pledged to make ev­ery mo­ment count for their chil­dren. Celebri­ties and top sports stars have also sup­ported the cam­paign by wear­ing spe­cial red or pink wrist bands. cam­paign de­signed to en­cour­age last­ing links be­tween care homes and their lo­cal com­mu­ni­ties, and to high­light the ex­cel­lent care that homes pro­vide.

●● Clock­wise from left: Cafes and shops tied rib­bons around rail­ings to show their sup­port; Oliver and Emily Scarf are pic­tured with their daugh­ter Ha­vana-Rose; and Amy Gal­lagher shows her sup­port for the cause

●● Staff at the Farm­ers Arms wore or­ange in sup­port of the cause. Pic­tured are Jor­dan Had­low, Craig Law­son, Han­nah Oliver, Emily Kelly and Emily Sc­ho­ley

●● Ev­ery­one driv­ing into Poyn­ton saw the streets adorned with or­ange rib­bons

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