Char­ity mis­sion for boy who is never full

Macclesfield Express - - LOOKING BACK - STU­ART GREER

STAFF at a Mac­cles­field firm have pledged to sup­port a char­ity which helps peo­ple with a rare ge­netic dis­ease.

Zuto, a car fi­nance com­pany based at Lyme Green, has strength­ened its ties with the Prader-Willi Syn­drome As­so­ci­a­tion (PWSA) af­ter three years of fundrais­ing.

The char­ity funds vi­tal re­search into the in­cur­able con­di­tion where com­mon symp­toms are learn­ing dif­fi­cul­ties, ab­nor­mal growths and ob­ses­sive eat­ing.

The rea­son be­hind Zuto’s pledge to sup­port PWSA is be­cause the young son of the firm’s CEO James Wilkin­son has the con­di­tion, which af­fects one in ev­ery 15,000 chil­dren born in Eng­land.

James said the char­ity had been a mas­sive sup­port to him and his son Jimmy.

Speak­ing of the part­ner­ship Mr Wilkin­son said: “I am thrilled we have built such a close re­la­tion­ship with PWSA, to not only raise much needed funds but help build the in­fra­struc­ture and skills re­source within the char­ity.

“My son, Jimmy, has Prader-Willi Syn­drome and the char­ity has been an in­valu­able sup­port to us over the years, so it is a cause very close to my heart.”

Zuto be­gan fundrais­ing for PWSA three years ago. Dur­ing that time bake sales, a char­ity cal­en­dar and sports days helped raise more than £25,000.

In the com­ing year Zuto plans to work closer with the or­gan­i­sa­tion to raise funds and sup­port with skills and train­ing.

Staff will be in­vited to un­der­take a num­ber of char­ity chal­lenges in­clud­ing skydiving and the three peaks chal­lenge.

Mean­while, the com­pany will lead a num­ber of tu­to­rial-based learn­ings for PWSA staff, to help the char­ity de­velop tech­ni­cal knowl­edge.

This will in­volve work­shops cov­er­ing top­ics that in­clude how to host web sem­i­nars and man­age so­cial media plat­forms.

Su­san Pass­more, from PWSA, said: “We are in­cred­i­bly grate­ful for the on­go­ing sup­port from Zuto and we are look­ing for­ward to work­ing in part­ner­ship with them over the com­ing years.

“Their sup­port en­ables us to con­tinue our vi­tal sup­port work with the Prader-Willi syn­drome com­mu­nity in the UK.”

The char­ity was formed in 1981 and runs a tele­phone helpline of­fer­ing vi­tal sup­port and guid­ance par­tic­u­larly in times of cri­sis, as well as train­ing and peer to peer sup­port.

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‘The char­ity has been an in­valu­able sup­port’

●● James Wilkin­son, from Zuto, and (left) his son Jimmy who has Prader-Willi Syn­drome

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