Support for motor neurone patients
A NEW wellbeing service for people with motor neurone disease (MND) and their carers is to be based at East Cheshire Hospice.
The sessions will be held in the Sunflower Centre at Millbank Drive on the third Friday of every month, starting on February 17.
The service is an initiative developed between the hospice clinical team and the MND Association and aims to improve the wellbeing of those affected by MND.
The project has been partly funded by a grant from Cheshire Community Foundation, which works to connect charitable donors with the causes which matter most in the area.
The hospice already has Living Well programmes for people affected by dementia and those with cancer or other lifelimiting illnesses and this new service will run along similar lines.
For example, there will be an educational element, including talks on fatigue management, equipment, communication, relaxation techniques plus an opportunity for those with MND and their carers to access support, advice and therapies.
MND is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.
MND is incurable and robs people of their independence and function. It can affect how people walk, talk, eat, drink and breathe but every person affected by this disease will have different problems.
Hospice senior physiotherapist Natalie Nye said: “The wellbeing service will be a collaboration between hospice clinical staff – i.e. physiotherapists, occupational therapists, nurses, complementary therapists, art therapists and social workers – and clinical staff from East Cheshire, including therapists and dieticians.
“We will also have the support of volunteers, including the local MNDA representative. Each session will cater for up to 15 patients and carers.
“We want to do something specifically for MND patients who have complex needs and the people who look after them who also face a variety of everyday challenges.”
If you wish to access the MND Wellbeing Service, ask your healthcare professional to refer you – referral forms are available on the ECH website www. eastcheshirehospice.org. uk.
Zoe Sheppard, CEO of Cheshire Community Foundation, said: “We’re so pleased that we’ve been able to help East Cheshire Hospice in providing this grant for their new motor neurone scheme.
“We’re passionate about matching donors with the most deserving projects in Cheshire and Warrington.”
Senior physiotherapist Natalie Nye (right) with hospice colleagues physiotherapist Laura Wright (left) and rehab assistant Gill Tomlinson