Sup­port for mo­tor neu­rone pa­tients

Macclesfield Express - - EAST CHESHIRE HOSPICE -

A NEW well­be­ing ser­vice for peo­ple with mo­tor neu­rone dis­ease (MND) and their car­ers is to be based at East Cheshire Hos­pice.

The ses­sions will be held in the Sun­flower Cen­tre at Mill­bank Drive on the third Fri­day of ev­ery month, start­ing on Fe­bru­ary 17.

The ser­vice is an ini­tia­tive de­vel­oped be­tween the hos­pice clin­i­cal team and the MND As­so­ci­a­tion and aims to im­prove the well­be­ing of those af­fected by MND.

The project has been partly funded by a grant from Cheshire Com­mu­nity Foun­da­tion, which works to con­nect char­i­ta­ble donors with the causes which mat­ter most in the area.

The hos­pice al­ready has Liv­ing Well pro­grammes for peo­ple af­fected by de­men­tia and those with can­cer or other life­lim­it­ing ill­nesses and this new ser­vice will run along sim­i­lar lines.

For ex­am­ple, there will be an ed­u­ca­tional el­e­ment, in­clud­ing talks on fa­tigue man­age­ment, equip­ment, com­mu­ni­ca­tion, re­lax­ation tech­niques plus an op­por­tu­nity for those with MND and their car­ers to ac­cess sup­port, ad­vice and ther­a­pies.

MND is a pro­gres­sive dis­ease that at­tacks the mo­tor neu­rones, or nerves, in the brain and spinal cord. This means mes­sages grad­u­ally stop reach­ing mus­cles, which leads to weak­ness and wast­ing.

MND is in­cur­able and robs peo­ple of their in­de­pen­dence and func­tion. It can af­fect how peo­ple walk, talk, eat, drink and breathe but ev­ery per­son af­fected by this dis­ease will have dif­fer­ent prob­lems.

Hos­pice se­nior phys­io­ther­a­pist Natalie Nye said: “The well­be­ing ser­vice will be a col­lab­o­ra­tion be­tween hos­pice clin­i­cal staff – i.e. phys­io­ther­a­pists, oc­cu­pa­tional ther­a­pists, nurses, com­ple­men­tary ther­a­pists, art ther­a­pists and so­cial work­ers – and clin­i­cal staff from East Cheshire, in­clud­ing ther­a­pists and di­eti­cians.

“We will also have the sup­port of vol­un­teers, in­clud­ing the lo­cal MNDA rep­re­sen­ta­tive. Each ses­sion will cater for up to 15 pa­tients and car­ers.

“We want to do some­thing specif­i­cally for MND pa­tients who have com­plex needs and the peo­ple who look af­ter them who also face a va­ri­ety of ev­ery­day chal­lenges.”

If you wish to ac­cess the MND Well­be­ing Ser­vice, ask your health­care pro­fes­sional to re­fer you – re­fer­ral forms are avail­able on the ECH web­site www. eastcheshire­hos­pice.org. uk.

Zoe Shep­pard, CEO of Cheshire Com­mu­nity Foun­da­tion, said: “We’re so pleased that we’ve been able to help East Cheshire Hos­pice in pro­vid­ing this grant for their new mo­tor neu­rone scheme.

“We’re pas­sion­ate about match­ing donors with the most de­serv­ing projects in Cheshire and War­ring­ton.”

Se­nior phys­io­ther­a­pist Natalie Nye (right) with hos­pice col­leagues phys­io­ther­a­pist Laura Wright (left) and re­hab as­sis­tant Gill Tom­lin­son

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