Adapted trike gives new lease of life for Theo

Macclesfield Express - - FRONT PAGE - RHI­AN­NON MC­DOWALL

ALIT­TLE boy who suf­fers from a rare ge­netic con­di­tion af­fect­ing his brain and sight has en­joyed his first ever bike ride.

Four-year-old Theo Mc­Clel­land was born with Mus­cle Eye Brain DiseaseDy s t o g l y c a n o p athy , which means he is ex­tremely short sighted, un­able to move around in­de­pen­dently and can- not com­mu­ni­cate other four-year-olds.

Mum Lydia Hors­man and dad Gareth Mc­Clel­land, of Ash­brook Road, Over Alder­ley, need to fundraise £9,000 each year to fund vi­tal treat­ment for Theo, which will help his brain de­vel­op­ment.

But now, thanks to a gen­er­ous do­na­tion from The Boparan Char­i­ta­ble Trust, Theo has been given his own spe­cial ther­apy trike, which will en­able him to do the thing he loves and help build like sta­bil­ity and core mus­cles. Lydia, 31, who gave up her job as a sci­ence teacher to care for Theo, said: “He loves the feel­ing of mov­ing around. He can sit up by him­self and crawl around on his belly, but he re­ally loves be­ing in his walker and now he has the bike too. It’s like a ther­apy for him, he re­ally en­joys it.

“It’s a bit of nor­mal­ity for us as a fam­ily too, every­one wants to see their four-year-old ride a bike.”

Theo’s dis­abil­ity is a form of Mus­cu­lar Dys­tro- phy.

The fam­ily have been putting most of their fundrais­ing ef­forts into rais­ing money for in­no­va­tive treat­ments for Theo which could help ‘re­wire’ his brain and help him com­mu­ni­cate in the fu­ture. And in March they raised £4,500 by host­ing a char­ity ball in his hon­our.

But Lydia said she con­tacted the char­ity di­rectly for as­sis­tance to buy the trike.

She said: “We’ve never reached out to char­ity be­fore, we try and raise as much money as we can our­selves. But this was some­thing for Theo that he could re­ally en­joy.

“We are so grate­ful to the Boparan Trust for mak­ing it pos­si­ble for us to have the trike, it will make such a dif­fer­ence to his life and also bring us to­gether as a fam­ily”.

Theo goes to Alder­ley Edge Pre-school and also en­joys Lit­tle Stars at Ash­grove, a sup­port play­group for chil­dren with additional needs.

The next fundrais­ing event on the cal­en­dar is when Gareth, 35, will take on the tough mud­der chal­lenge in Septem­ber.

To sup­port the fundrais­ing go to https://www. just­giv­ing.com/fundrais­ing/theosjour­ney.

For more in­for­ma­tion about the char­ity go to the­boparan­char­i­ta­bletrust.com.

Above, Theodore Mc­Clel­land, aged four, from Mac­cles­field, has the rare con­di­tion Mus­cle Eye Brain Dis­ease; left, Theo is pic­tured with mum Lydia and dad Gareth

Bolling­ton Light Opera Group are pre­par­ing for their lat­est pro­duc­tion of Hair­spray

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