‘When I was told I was re­ally scared’

Macclesfield Express - - FRONT PAGE - RHIANNON MCDOWALL

AMUM whose baby was born with his stom­ach on the out­side of his body has shared her story as the con­di­tion be­comes more com­mon.

Baby Char­lie Lyall was born with gas­troschi­sis – a se­ri­ous con­di­tion where the in­testines do not nat­u­rally move from the um­bil­i­cal cord into the body.

He had to be whisked away from new par­ents, El­lie An­der­son and Daniel Lyall, within a few hours

Iof be­ing born so that doc­tors could op­er­ate and put the in­testines in­side the body.

El­lie, 27, of Cum­ber­land Street, said : “It was scary.

“He had to have an op­er­a­tion to put them back when he was three hours old.

“I was told that wouldn’t be able to hold him when he was born, but noth­ing can pre­pare you for it re­ally.”

She said: “I knew it was go­ing to hap­pen but it didn’t make it any eas­ier.”

El­lie and Daniel, who are due to be mar­ried next week, learned about Char­lie’s con­di­tion dur­ing the three-month scan.

El­lie was told she would need to be in­duced so that the op­er­a­tion on Char­lie’s stom­ach could take place, and gave birth to Char­lie at St Mary’s Hos­pi­tal, in Manch­ester, on Oc­to­ber 17 last year.

She added: “He wasn’t able to eat for three weeks so we had to grad­u­ally in­tro­duce food to him. But now he’s ab­so­lutely fine. He hasn’t even got a scar be­cause they op­er­ated through his belly but­ton. He’s nine months old now and he’s a happy, healthy baby.”

Gas­troschi­sis oc­curs in one of ev­ery 2,000 births – a fig­ure which re­searchers say is in­creas­ing.

For­mer All Hal­lows stu­dent El­lie, who runs An­der­son’s Dance School in Wilm­slow, says its im­por­tant to share her story so new mums can be pre­pared.

She said: “We’re try­ing to raise aware­ness be­cause it’s be­com­ing a lot more com­mon. They don’t know why it hap­pens, it’s counted as a birth de­fect. But when I was told about it I was re­ally scared be­cause I’d never heard of it be­fore.

“But it’s im­por­tant to know that there’s so much that can be done for ba­bies with this birth de­fect.”

Gas­troschi­sis Aware­ness Day, which falls this Sun­day (July 30), is aimed at rais­ing aware­ness of the con­di­tion.

El­lie and her fam­ily have also raised £640 for Avery’s An­gels, a char­ity set up to sup­port gas­troschi­sis re­search, aware­ness and sup­port for pa­tients and fam­i­lies.

Baby Char­lie Lyall was born with a se­ri­ous con­di­tion; In­set be­low, mum El­lie An­der­son with part­ner Daniel Lyall

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