Fam­ily’s quest to cure Dy­lan

Rutherglen Reformer - - Front Page - Dou­glas Dickie

The fam­ily of a Cam­bus­lang tot will head to Lon­don this week to see if there is any­thing that can be done for his rare, po­ten­tially fa­tal, heart con­di­tion.

Lit­tle Dy­lan O’Cole, who turned one last week, suf­fers from Hy­per­trophic Ob­struc­tive Car­diomyophathy — which causes thick­en­ing of mus­cles around the heart, leav­ing Dy­lan at con­stant risk of car­diac ar­rest.

The con­di­tion is ex­tremely rare in chil­dren of Dy­lan’s age, with doc­tors telling the fam­ily there is only a one in 100,000 chance of an in­fant suf­fer­ing from it.

Dy­lan was di­ag­nosed in Fe­bru­ary, but doc­tors re­main stumped as to the best way for­ward in his treat­ment.

Him mum, Elaine (35), and dad David ( 34), will travel with Dy­lan to Great Or­mond Street Hos­pi­tal on Fri­day for a con­sul­ta­tion with spe­cial­ists.

Elaine, who works in Equis in Drum­sagard, ad­mits it will be a step into the un­known for the fam­ily, which also in­cludes Dy­lan’s older brother, Tay­lor, a pupil Park View Pri­mary.

She said: “Ba­si­cally, the mus­cle around Dy­lan’s heart is so thick, it is crush­ing his heart.

“He’s on med­i­ca­tion just now but no-one seems to know what they can do for it .You see it more of­ten in chil­dren about eight or nine, but none of the doc­tors had seen it in some­one as young as Dy­lan.

“The main risk is car­diac ar­rest, that is the big fac­tor. To look at him you’d think he was a nor­mal wee boy, but he’s liv­ing with a time bomb in­side him.

“It’s hard. We just take it one day at a time. He’s crawl­ing now but we can see him get­ting more and more breath­less.

“We’re hop­ing for

the best when we go down, but we’re pretty clue­less as to what to ex­pect — we don’t know what we’re walk­ing into.

“They’ve spo­ken about open heart surgery, but we just won’t know un­til we get down there.”

Doc­tors ini­tially thought Dy­lan was suf­fer­ing from croup, but fur­ther in­ves­ti­ga­tions at Yorkhill Hos­pi­tal re­vealed the true ex­tent of his con­di­tion.

Since then, he’s made reg­u­lar trip to hos­pi­tal to have his con­di­tion mon­i­tored.

Ac­cord­ing to Elaine, Dy­lan is just a nor­mal boy on the out­side: “Watch­ing him, you wouldn’t know there was any­thing wrong.

“He can crawl but he’s also started putting his hands on the wall try­ing to climb up and when he gets there he doesn’t know what to do!

“That’s just nor­mal baby stuff, but on the in­side his heart is be­ing crushed.”

Elaine, who stays with her fam­ily in Macfar­lane Cres­cent in Half­way, is now plan­ning to host a char­ity night to raise aware­ness of heart dis­ease in in­fants and to raise money for Yorkhill Chil­dren’s Char­ity.

She has se­cured the Hazel­wood Pub in Nit­shill, which is owned by her sis­terin-law and she has been in­un­dated with of­fers of help af­ter post­ing on the All About Cam­bus­lang Face­book page.

The night, which will in­clude a DJ as well as char­ity auc­tions and raf­fles, will take place on Au­gust 22.

As well as lo­cal res­i­dents, busi­nesses like Elaine’s em­ployer, Equi’s, Classy Chicks, Asian Tan­doori, and Mar­ion’s Flow­ers have all came for­ward to help.

She said: “The do­na­tions and of­fers of help we’ve had through Face­book has been un­be­liev­able.

“We’ve got a kids gar­den bench, cus­tom made and worth about £300, which we’re go­ing to auc­tion off.

“Last month I was up at Yorkhill and there was a baby, only three weeks old, and I’d never seen any­thing like it — it was so sad.

“You look at Dy­lan and you wouldn’t know any­thing was wrong, so I just wanted to do some­thing to help.”

Brave boy Lit­tle Dy­lan McCole, plays with his mum Elaine and brother Tay­lor

Close Elaine with sons Tay­lor and Dy­lan

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