New hearing aid for brave little Lloyd
A brave little Rutherglen lad who suffers from a rare genetic disorder could be in line to receive a pioneering new hearing aid technology.
The Reformer has followed the progress of five-year-old Lloyd Wray since 2010.
The three-year-old suffers from Treacher Collins Syndrome, a rare autosomal dominant congenital disorder that is found in about one in every 10,000 births.
The signs and symptoms of this disorder vary greatly, ranging from almost unnoticeable to severe.
Lloyd was born on June 23, 2010, but was later admitted to Yorkhill Children’s Hospital, Glasgow, with a chest infection.
He had a brain scan which revealed he had Treacher Collins syndrome.
As a result Lloyd, of Calderwood Road, had to have a hearing aid fitted as well as a tracheostomy.
He lives with mum Donna ( 39), dad Brian (41), brother Layton(12) and sister Leah(9).
In 2013 Lloyd had an operation to have a baha hearing fitted.
A baha hearing aid is a bone-anchored hearing which is a type of hearing aid based on bone conduction.
However this type of hearing aid caused problems for Lloyd, as Donna explained: “With this type of hearing aid Lloyd had to have a pin inserted in his head.
“However the pin actually fell out. We were going back to the hospital this month to get it put back.
“Now there’s this new product and it could make a lot of difference for Lloyd.”
The new hearing aid is called the Baha Attract System.
The hearing aid has a magnetic connection that offers ease- of- use and an invisible link between the Baha sound processor and the implant.
Donna added: “It will be a lot better than having the pin in and hopefully it will be more comfortable. We still need to speak to the hospital about it but we’re positive.”
Lloyd has recently graduated from Stonelaw Pre School, he will go on to Calderwood Primary after the summer.
The family have only recently returned from a holiday in Spain and were given a fright before they left as Lloyd had trouble with his breathing.
Donna added: “Before we went on holiday he had a viral infection for a couple of weeks. We had him at the hospital as he was having trouble with his breathing which caused by things like flem.
“It cleared up okay but it was quite worrying at the time!
Despite that scare, little Lloyd has been thriving and can’t wait to start primary school.
It was his birthday not long ago and they hosted a pirate themed birthday party.
Donna added: “It was his fifth birthday in June. We got him a bike so he is enjoying learning to cycle.
“We’re also getting him to learn to swim, which he’s also really keen on.
“He loved the pirate themed party, he had a great time.
“We’ve got him his new lunch box and bag for school and he’s really keen to get started!”
Family Lloyd with mum Donna and dad Brian