Hannah shares her experiences of painful condition
EVERYONE experiences pain – but not everyone is forced to fight it every day of their lives.
For one young woman, it got to the point where she would be screaming in agony – and now she wants to help other people suffering the same condition.
Hannah Davies, from Pontypridd, was diagnosed with fibromyalgia when she was just 13.
It’s a condition that causes pain to be experienced all over the body and it can also cause fatigue and muscle stiffness and makes it difficult for people to sleep.
It mostly occurs in people between the ages of 30 and 50 so it was quite unusual for Hannah to be diagnosed at such a young age.
But, after experiencing pain for quite a long time, she was determined to find out exactly what was causing her to feel so distressed.
Hannah said: “I had been experiencing really bad stomach cramps and was suffering with bad pain in my legs which did not seem to make much sense.
“For some people it can take up to five years before they are diagnosed.
“I had been experiencing stomach cramps for about two years before I was diagnosed.
“I had a lot of tests done beforehand but they kept coming back saying there was nothing wrong.”
Finally being given a name for the condition came as a relief to Hannah.
She said it was confirmation she hadn’t made any of her symptoms up.
When Hannah was initially diagnosed she was suffering a lot.
She would miss school in blocks and sometimes she would be absent for up to six weeks at a time.
“The stomach cramps started getting better when I was in year nine but all the other symptoms are still there,” she added.
“Unfortunately there is not really a lot you can do for the condition.
“You just have to deal with it for the rest of your life.
“You can help to control it with medication but you just have to get on with it really.”
Hannah, who is now 20, wants to show other people just how much the condition can take over your life.
She thinks there is a lot of “negative talk” about fibromyalgia because the illness is “misunderstood”.
For this reason she’s set up a blog to document her feelings and experiences.
Hannah said: “There are some days when I can’t even get out of bed. “It’s hard to deal with – it’s really tough. “When it came to the blog, I had been thinking about it for a while.
“I have always loved writing and then there was one time when I had a particularly bad day.
“I was in a lot of pain and was feeling really depressed.
“I had to use the disabled shower because I could not stand up for long enough to wash myself and I thought ‘I don’t think people talk about the condition enough to understand it’ and it’s a big problem.”
In a plea to get more people taking about chronic illnesses, Hannah set up The Pain Princess.
She hopes it will help to break down the stigma of conditions like fibromyalgia – and so far it’s been a great success.
As well as receiving a lot of positive feedback, Hannah has also seen people around the world read her story.
She said: “I did not think many people would read it but I’ve had so many positive comments.
“I’ve heard from people who claim that fibromyalgia makes more sense to them now and it’s helped them to understand.
“My family and my boyfriend have been so supportive throughout everything.
“My mother sometimes has to dress me and by boyfriend sometimes has to wash my hair for me.
“I wouldn’t have been able to be as positive as I am without them.
“They are willing to do anything for me and I want to show how grateful I am to them.”
To read more about Hannah’s story visit her blog at thepainprincess.wordpress.com