Brave mum becomes plus-size model hit
ASOUTHPORT mum with a rare incurable disease has embarked on a career as a plus-size model. Stephanie Harding, 30, said she refuses to let her diagnosis control her life.
She took part in her first professional shoot yesterday (Thursday), after winning a competition to model a curvy range for local store Sparkles Boutique.
Mum-of-two Stephanie suffers from Ehlers-Danlos syndrome (EDS), an incurable hereditary disorder which affects the connective tissues in the body.
At present, there are few EDS specialists in the UK, and Stephanie wasn’t even diagnosed until last year, despite showing symptoms since birth.
She said: “I was constantly tired and/or in pain, I knew something wasn’t right. You know your own body, don’t you?
“But whenever I’d go to the GP, they’d blame my weight or depression. I was made to feel silly and like a hypochondriac.”
EDS, which affects around one in 5,000 people, weakens the tissue that holds the body together. It causes hypermobility and frequent dislocations of the joints, stretchy skin, problems with internal organs and constant pain.
Stephanie said she suffers dislocations every day as well as “fragile skin” but does not experience the stretchy skin element of the condition.
“My ankles constantly roll daily and I have a permanent hip injury because of it,” she said.
Stephanie, who said she loses entire days of her life due to being ‘wiped out with pain’, finally saw a specialist in London last year.
She continued: “He made me feel like he believed me, like he understood.
“He told me about EDS and it was like he was reading about my body.
“I know GPs can’t know everything but there are so many people with rare conditions, and they shouldn’t be dismissed.”
Stephanie told the Visiter she is going to set up a blog combining her love of fashion and beauty with raising awareness for EDS and other ‘invisible illnesses’, as well as taking part in more fashion photoshoots.
Stephanie added: “I loved the photoshoot. It was a massive confidence boost and local photographer Craig Wilko was great. A year ago I’d never have imagined doing something like this, but there comes a time when you have to stop caring what other people think and just do what you want.”
To find out more about EDS, go to www.nhs.uk/conditions/ ehlers-danlos-syndrome
Stephanie Harding: now modelling for a boutique