Fam­ily’s fundrais­ing plan in Shani’s mem­ory

The Jewish Chronicle - - NEWS - BY LIANNE KOLIRIN

THE GRIEV­ING par­ents of a six-yearold girl who died fol­low­ing com­pli­cated open heart surgery are rais­ing funds for the hospi­tal where she spent some of her short life.

Shani Ber­man’s Bore­ham­wood­based fam­ily have set up a JustGiv­ing page to raise vi­tal funds for Great Or­mond Street Hospi­tal (GOSH), where she was first treated as a baby.

Her par­ents Si­mon and Juliet wrote on the fundrais­ing page: “We’re rais­ing money in Shani’s mem­ory for Great Or­mond Street Hospi­tal Chil­dren’s Char­ity be­cause they want to im­prove life chances for heart kids.”

Speak­ing to the JC, Mr Ber­man added: “A few lovely friends told us they wanted to raise some money in Shani’s name in var­i­ous ways, and so we cre­ated the JustGiv­ing page with Great Or­mond Street’s help to pro­vide a com­mon col­lec­tion point for those en­deav­ours.”

Shani, the youngest of three sib­lings and a pupil at Im­manuel Col­lege

Prep School in Bushey, was born with a large hole in her heart and no valve link­ing it to her lungs. GOSH im­planted a tiny Gore-Tex tube where the valve should have been. Then at 20 months she suf­fered from heart fail­ure and her par­ents were told that she would not make it. “Yet, re­mark­ably, over the next four years, Shani grew into a lively lit­tle girl,” reads the fundrais­ing page In re­cent months Shani’s con­di­tion be­gan to de­te­ri­o­rate, so doc­tors rec­om­mended more surgery to re­place the Gore-Tex tube.

An emo­tional Mr Ber­man said: “The plan was to give her a valve and a new lease of life but it was al­ways un­cer­tain how her heart would re­act. Despite two weeks in in­ten­sive care she never pulled through.”

Shani died in Fe­bru­ary, and Mr Ber­man said: “We’ve ob­vi­ously been hit very hard by this tragedy and we’ve found that one of the ways we’ve tried to stay strong and see a fu­ture is to try and make Shani’s mem­ory into a bless­ing and try and bring her smile and de­ter­mi­na­tion and laugh­ter into as many people’s lives as pos­si­ble.

The fam­ily hope to raise £5,000 for GOSH.

https://www.justgiv­ing.com/ fundrais­ing/shaniber­man

Shani Ber­man

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