Mother has ‘no re­grets’ over tak­ing dy­ing son to Mex­ico

The Scotsman - - Around Scotland - By KE­VAN CHRISTIE Health Cor­re­spon­dent

The mother of a ter­mi­nally ill eight-year-old who died on Tues­day has said she has “no re­grets” about tak­ing him to Mex­ico for treat­ment.

Jen­nifer Ure Ste­wart told the Scots­man that the nine trips to the Mon­ter­rey Vale Clinic where her son Luke re­ceived 14 sets of treat­ment for an ag­gres­sive brain tu­mour known as Dif­fuse In­trin­sic Pon­tine Giloma (DIPG), had pro­longed the young­ster’s life by around a year.

Mrs Ure Ste­wart from Tra­nent, plans to con­tinue her cam­paign for fund­ing to be made avail­able to re­search a cure for DIPG and said it’s her dream to build a hospice in East Loth­ian to hon­our her son’s legacy and help other ter­mi­nally ill chil­dren.

Mrs Ure Ste­wart and hus­band Mark, who have two other boys, Lewis, aged six and two-year-old Lochlin, set up the Just­giv­ing page Help Luke which raised an in­cred­i­ble £187,000, money which was used to give their son ground­break­ing treat­ment in Mex­ico to pro­long his life.

Luke was di­ag­nosed in Jan­uary 2017 and passed away at the Rachel House Hospice in Kin­ross at 5:25am on Tues­day.

He was only given be­tween six and nine months to live by doc­tors in Scot­land and told that the NHS could only pro­vide him with ra­dio­ther­apy to al­low him a sem­blance of qual­ity of life.

How­ever, the brave young­ster de­fied the odds be­fore suc­cumb­ing to the ef­fects of pneu­mo­nia.

Jen­nifer said she would do the same thing “ten times over” in mak­ing the de­ci­sion to take Luke to Mex­ico.

She added: “I have no re­grets if we hadn’t done that we would have lost Luke over a year ago.

“We got prob­a­bly over a year more with Luke and it was qual­ity time.

“He wasn’t in and out of hospi­tal, he wasn’t ly­ing in a bed he wasn’t sick. He had a qual­ity life and he en­joyed so much of that. I think as a fam­ily we packed more into 19 months than we might have done in a whole life­time be­cause of the time we spent to­gether.

“He loved go­ing to Mex­ico, he loved the peo­ple over there, he loved trav­el­ling and he re­ally en­joyed it.”

A minute’s ap­plause was held for Luke in the eighth minute of Hibs match against NSI Ru­navik on Thurs­day night.

The fam­ily now plan a cel­e­bra­tion of his life with a ser­vice at Lib­er­ton Kirk on Wed­nes­day fol­lowed by his fu­neral at Mor­ton­hall Cre­ma­to­rium.

There are also plans for a party to hon­our Luke on Sun­day July 22 at the Royal Mus­sel­burgh Golf Club.

Jen­nifer Ure Ste­wart with her son Luke who re­ceived 14 sets of treat­ment in Mex­ico for an ag­gres­sive brain tu­mour

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