GA Voice - - Ge­or­gianews -

I’m in­trigued by the idea that you are hear­ing im­paired, yet you in­clude sounds as part of your ex­hi­bi­tion. Can you elab­o­rate on why you in­cluded them?

Sound is al­ways in­trigu­ing to me. I love mu­sic, specif­i­cally elec­tronic or funk, how­ever sound is also over­whelm­ing for me. Even though I rely on a hear­ing aid, this doesn’t mean I can hear ev­ery­thing – es­pe­cially when I am in a crowded space. The other scary thing is when I lose my hear­ing aid in a pub­lic space. One time, I lost my hear­ing aid in a club. It was a ter­ri­fy­ing ex­pe­ri­ence.

What do you feel is your great­est chal­lenge?

I think the great­est chal­lenge is try­ing to get peo­ple to un­der­stand – specif­i­cally strangers – that I don’t feel as sorry for my­self be­cause I have a dis­abil­ity as they feel sorry for me. Part of this show tack­les the ab­sur­dity of the way peo­ple treat me and part of it cre­ates rep­re­sen­ta­tion that I haven’t seen per­son­ally in a queer or dis­abled sense that I have been long­ing for. So in terms of that ques­tion, I think the chal­lenge is to be un­der­stood for who I am as a gen­eral per­son

Usu­ally when I get up, I spend a few hours in a cof­fee shop do­ing work and jour­nal­ing. I am mainly a free­lance il­lus­tra­tor, so the days vary depend­ing on the project. I either work on an ed­i­to­rial il­lus­tra­tion, or a mu­ral, or a per­sonal project. It makes life in­ter­est­ing.

You are try­ing to share your ex­pe­ri­ences liv­ing with your rare syn­drome with this ex­hi­bi­tion. How can peo­ple meet you in the mid­dle? “How Nice”

I’m try­ing to take an em­pa­thetic per­spec­tive ver­sus a sym­pa­thetic one. When peo­ple hear about my syn­drome/ex­pe­ri­ences, they of­ten pity me. They usu­ally re­spond with some­thing like, “I’m sorry you went through what you went through or go through.” For me, I’m used to my ex­pe­ri­ences. Every­one in their life goes through frus­trat­ing things and I think it’s how you han­dle it.

What does a day in your life look like?

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