I’m intrigued by the idea that you are hearing impaired, yet you include sounds as part of your exhibition. Can you elaborate on why you included them?
Sound is always intriguing to me. I love music, specifically electronic or funk, however sound is also overwhelming for me. Even though I rely on a hearing aid, this doesn’t mean I can hear everything – especially when I am in a crowded space. The other scary thing is when I lose my hearing aid in a public space. One time, I lost my hearing aid in a club. It was a terrifying experience.
What do you feel is your greatest challenge?
I think the greatest challenge is trying to get people to understand – specifically strangers – that I don’t feel as sorry for myself because I have a disability as they feel sorry for me. Part of this show tackles the absurdity of the way people treat me and part of it creates representation that I haven’t seen personally in a queer or disabled sense that I have been longing for. So in terms of that question, I think the challenge is to be understood for who I am as a general person
Usually when I get up, I spend a few hours in a coffee shop doing work and journaling. I am mainly a freelance illustrator, so the days vary depending on the project. I either work on an editorial illustration, or a mural, or a personal project. It makes life interesting.
You are trying to share your experiences living with your rare syndrome with this exhibition. How can people meet you in the middle? “How Nice”
I’m trying to take an empathetic perspective versus a sympathetic one. When people hear about my syndrome/experiences, they often pity me. They usually respond with something like, “I’m sorry you went through what you went through or go through.” For me, I’m used to my experiences. Everyone in their life goes through frustrating things and I think it’s how you handle it.
What does a day in your life look like?