Las Vegas Review-Journal

AUTISM

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cover an autistic child’s therapy.

“You feel heartache and heartbreak every day because you just want him to have the same chances that other 5-year-old boys do, you know?” his father, 44-year-old Rick Nostro, said.

Depending on the service needed — from diagnostic­s, to therapies, to state services — waits can range from several weeks to more than a year, advocates and providers say. There just aren’t enough providers in town to meet the growing need of the community.

Once again, it’s an example of Nevada’s health care shortage. For mental health care, the state ranks toward the bottom in the number of psychiatri­sts and psychologi­sts.

“When I first came here, autism was 1 in 250 (children). That was back in 2000,” said Julie Beasley, a child neuropsych­ologist and clinical director of the UNLV School of Medicine’s Ackerman Autism Center.

Today, more than 8,500 children in Nevada are on the autism spectrum, and 1 in 68 children are affected nationwide.

“That’s huge numbers, and the treatment of autism is very time intensive,” Beasley said.

Diagnosis alone can take up to eight hours at Beasley’s office, she said, and 10 to 15 hours with child neuropsych­ologist Nicole Cavenagh at the Center for Child and Family Developmen­t.

A developmen­tal behavioral pediatrici­an can also diagnose autism in a child, but the single provider in Las Vegas is also the only one in Nevada, Beasley said.

“This is not a thing where we’re able to draw some blood and run a blood test,” said Cavenagh, who left Touro University Nevada’s Center for Autism and Developmen­tal Disabiliti­es in 2015 for private practice. Touro’s autism center plans to hire a neuropsych­ologist in the next few months and a developmen­tal pediatrici­an within the year, renewing its ability to provide diagnostic services for parents who suspect their kids may be on the autism spectrum.

Cavenagh said her diagnosis includes a series of parent interviews and child assessment­s to determine if they’re showing signs of autism, which stretches over multiple meetings. She then writes a report and sits down with the family to discuss treatment options, give referrals and provide resources.

“You go see a pediatrici­an for a ‘well-child’ visit and you’re in and out in 15 minutes,” she said. “It’s not like that.”

Because the process is time consuming, Cavenagh’s office, which is staffed by two other licensed psychologi­sts and a post-doctoral fellow, can only see 10 children per week on average. “And that’s a pretty high number,” she said.

Jennifer Strobel, executive director at Families for Effective Autism Treatment, a local advocacy group, said when parents call their office frustrated over long waits, they sometimes recommend going to California or Arizona for treatment, especially diagnosis. Rhonda Sebron said her family looked into the option but decided against it because it would mean moving away from family in Nevada.

Beasley does her best to look at the positives: Before the Ackerman Center opened its doors about two years ago, wait lists were even longer and services even more limited. When the state’s Autism Treatment Assistance Program, which covers the cost of autism-related therapy for Nevada families, was establishe­d in 2012, it served about 100 children. Now, though the wait list stretches 390 days, it’s providing therapy to more than 700.

Luna Smerkin, whose 9-year-old son Yosef and 6-year-old daughter Deborah are both autistic, was sick and tired of encounters with providers who she said were inconsider­ate of her family’s needs, so she took matters into her own hands.

She withdrew her children from their care, put them on wait lists at other area clinics, and completed a master’s program online for applied behavioral analysis therapy, or ABA.

“I’ve been doing ABA with them all the time myself,” said Smerkin, who has been on a wait list for nearly two years at the UNLV Ackerman Center and is now hoping to score two open spots for her children at Easterseal­s Nevada.

“My only hope for them is to be independen­t, to be self-sufficient, to be able to be a part of the society and to have the same opportunit­ies as anyone else.”

Contact Jessie Bekker at jbekker@ reviewjour­nal.com or 702-380-4563. Follow @jessiebekk­s on Twitter.

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