Re: “Supreme Court strikes down Vt. data-mining regulation,” Modern Healthcare.com, June 23: Where is the patient’s free speech? I don’t want my health information to be shared with anyone except my doctors and for payment purposes.
HIPAA has given away the patient’s right to privacy by allowing access for data miners. What if a patient has certain religious beliefs and doesn’t want his information (de-identified or not) to be used in certain commercial or academic research that may conflict with his beliefs? I feel like pharmaceutical companies will use my health information to ultimately motivate doctors to sell me ridiculously expensive medication. I’m tired of paternalistic organizations and the government saying that they have interest in my health information only because they know what is best for me. I’m at the point that I’m very tempted to stop going to the doctor. That’s the only way to prevent my health information from being sold and supplied to researchers, marketing organizations, pharmaceutical companies and any other entity looking to make a buck off of my data.
Sherrie Drye Cannoy Assistant professor, business education North Carolina Agricultural & Technical State University Greensboro