Lansdale family struggles with medical costs for 3-year-old daughter
Even before she was born, Hannah Faith Mohn’s parents knew their the child was stepping into a world that would challenge her. During a routine ultrasound 20 weeks into the pregnancy, doctors noticed Hannah wasn’t moving very much. The doctor informed the family that Hannah probably had a chromosome disorder, but they wouldn’t know the severity until she was born.
Due to the level of uncertainty that surrounded the pregnancy, Jen Mohn was moved to Children’s Hospital of Philadelphia for more tests. Doctors determined Hannah had Arthrogryposis Multiplex CRnJHnLtD — PultLSlH fixHd MRLnts throughout the body with an underlying cause — and that she most likely wouldn’t survive past birth.
This left parents Jen and Tim Mohn very distraught, but then Sept. 18, 2009, Hannah came out of her mother screaming and full of life.
Now, at age 3, Hannah can’t stand or talk clearly. Doctors still haven’t been able to diagnose Hannah’s neuromuscular disorder, besides determining it to be genetic. Since birth she’s had eight surgeries and been hospitalized numerous times for pneumonia.
“Hannah has taught us all so much,” Jen Mohn said. “For all the pain and discomfort she goes through daily, she smiles through every bit of it.”
Upon Hannah’s birth, Jen had to quit her job in order to take Hannah to all of her surgeries, therapies and to keep a close watch on her. The couple had to sell their house and move into a two-bedroom apartment, along with their now 6-year-old son, Andrew.
Recently, the Mohns boarded up with Jen’s mother, Diane ,and Diane’s mother, who is suffering from dementia. Living together allowed the family to purchase a house in Lansdale to have more space for the kids.
Big brother Andrew is a life saver on many occasions. Sometimes when Hannah starts coughing, she’ll choke because her disease greatly weakens her muscles. Andrew will run upstairs and get the suction machine to remove the mucus that is making Hannah choke. Hannah has numerous respiratory machines, including a cough-assist machine.
Every purchase of equipment that allows Hannah to get through daily life costs the family thousands of dollars and often includes a battle with the insurance company. Some purchases include $7,000 for a stander that is used for therapy to get Hannah upright.
“It seems as Hannah is growing, the costs are growing,” Jen said.
0Rst UHFHntly, DItHU D yHDU fiJhting with the insurance company, the Mohns were able to get a power chair paid for by insurance for Hannah. However, this power FhDLU dRHsn’t fit Ln tR thH IDPLly’s van. They need to complete a van conversion, which will take out the back seat of the van and add a power lift to lift the chair into the back of the vehicle.
The cost of the van conversion is $3,600, and the Mohns can’t afford it.
Insurance doesn’t cover this cost or other conversions and adaptations the Mohns have to make to their house.
“A lot of people assume that kids like Hannah get additional disability money, but we don’t qualify as a family even on one income,” Jen said.
This is what prompted their Realtors, Lisa and Scott Loper, to reach Rut tR find FRPPunLty DssLstDnFH for the Mohns. However, the cause is yet to be taken on.
Those interested in donating to the Mohns to help with Hannah’s medical costs can do so at www. hannahfaithmohn.com or by making checks out to “Hannah Faith Mohn” and mailing them to 1861 Rampart Lane,Lansdale, PA 19446.
Hannah Faith Mohn, 3, center, gets kisses from her mom, Jenn, her dad, Tim, and her brother, Andrew, 6.