Help­ing Han­nah

Lans­dale fam­ily strug­gles with med­i­cal costs for 3-year-old daugh­ter

North Penn Life - - Front Page - By Jen­nifer Connor jcon­nor@jour­nalregis­

Even be­fore she was born, Han­nah Faith Mohn’s par­ents knew their the child was step­ping into a world that would chal­lenge her. Dur­ing a rou­tine ul­tra­sound 20 weeks into the preg­nancy, doc­tors no­ticed Han­nah wasn’t mov­ing very much. The doc­tor in­formed the fam­ily that Han­nah prob­a­bly had a chro­mo­some dis­or­der, but they wouldn’t know the sever­ity un­til she was born.

Due to the level of un­cer­tainty that sur­rounded the preg­nancy, Jen Mohn was moved to Chil­dren’s Hospi­tal of Philadel­phia for more tests. Doc­tors de­ter­mined Han­nah had Arthro­gry­po­sis Mul­ti­plex CRnJHnLtD — PultLSlH fixHd MRLnts through­out the body with an un­der­ly­ing cause — and that she most likely wouldn’t sur­vive past birth.

This left par­ents Jen and Tim Mohn very dis­traught, but then Sept. 18, 2009, Han­nah came out of her mother scream­ing and full of life.

Now, at age 3, Han­nah can’t stand or talk clearly. Doc­tors still haven’t been able to di­ag­nose Han­nah’s neu­ro­mus­cu­lar dis­or­der, be­sides de­ter­min­ing it to be ge­netic. Since birth she’s had eight surg­eries and been hos­pi­tal­ized numer­ous times for pneu­mo­nia.

“Han­nah has taught us all so much,” Jen Mohn said. “For all the pain and dis­com­fort she goes through daily, she smiles through ev­ery bit of it.”

Upon Han­nah’s birth, Jen had to quit her job in or­der to take Han­nah to all of her surg­eries, ther­a­pies and to keep a close watch on her. The cou­ple had to sell their house and move into a two-bed­room apart­ment, along with their now 6-year-old son, An­drew.

Re­cently, the Mohns boarded up with Jen’s mother, Diane ,and Diane’s mother, who is suf­fer­ing from de­men­tia. Liv­ing to­gether al­lowed the fam­ily to pur­chase a house in Lans­dale to have more space for the kids.

Big brother An­drew is a life saver on many oc­ca­sions. Some­times when Han­nah starts cough­ing, she’ll choke be­cause her disease greatly weak­ens her mus­cles. An­drew will run up­stairs and get the suc­tion ma­chine to re­move the mu­cus that is mak­ing Han­nah choke. Han­nah has numer­ous res­pi­ra­tory machines, in­clud­ing a cough-as­sist ma­chine.

Ev­ery pur­chase of equip­ment that al­lows Han­nah to get through daily life costs the fam­ily thou­sands of dol­lars and of­ten in­cludes a bat­tle with the in­surance com­pany. Some pur­chases in­clude $7,000 for a stander that is used for ther­apy to get Han­nah up­right.

“It seems as Han­nah is grow­ing, the costs are grow­ing,” Jen said.

0Rst UHFHntly, DItHU D yHDU fiJht­ing with the in­surance com­pany, the Mohns were able to get a power chair paid for by in­surance for Han­nah. How­ever, this power FhDLU dRHsn’t fit Ln tR thH IDPLly’s van. They need to com­plete a van con­ver­sion, which will take out the back seat of the van and add a power lift to lift the chair into the back of the ve­hi­cle.

The cost of the van con­ver­sion is $3,600, and the Mohns can’t af­ford it.

In­surance doesn’t cover this cost or other con­ver­sions and adap­ta­tions the Mohns have to make to their house.

“A lot of peo­ple as­sume that kids like Han­nah get ad­di­tional dis­abil­ity money, but we don’t qual­ify as a fam­ily even on one in­come,” Jen said.

This is what prompted their Real­tors, Lisa and Scott Loper, to reach Rut tR find FRPPunLty DssLstDnFH for the Mohns. How­ever, the cause is yet to be taken on.

Those in­ter­ested in do­nat­ing to the Mohns to help with Han­nah’s med­i­cal costs can do so at www. han­nah­faith­ or by mak­ing checks out to “Han­nah Faith Mohn” and mail­ing them to 1861 Ram­part Lane,Lans­dale, PA 19446.

Han­nah Faith Mohn, 3, cen­ter, gets kisses from her mom, Jenn, her dad, Tim, and her brother, An­drew, 6.

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