Murt thanked for Tourette’s sup­port

The Globe - - OPINION -

qo the ed­i­torW

qhis is to ac­knowl­edge and thank state oepK qhomas Murt for lead­ing the ef­fort to re­store fund­ing to the menn­syl­va­nia qourette pyn­drome Al­lianceK

As a par­ent of boy with qourette’s syn­drome, f can tell you that th­ese chil­dren are of­ten mis­un­der­stood, tar­geted, mocked and bul­liedK qhis lack of aware­ness and un­der­stand­ing ex­tends from play­grounds to school roomsK A spe­cial ed­u­ca­tion teacher once made my son turn his desk fac­ing a cor­ner be­cause he was un­con­trol­lably blurt­ing out vo­cal tics in her class­roomK ft breaks my heart when f think about how painful and hu­mil­i­at­ing that ex­pe­ri­ence was for himK

qhe qourette pyn­drome Al­liance ad­vo­cates and fights for th­ese kids, and trav­els the state meet­ing with educators and oth­ers in an ef­fort to ed­u­cate peo­ple and raise aware­nessK qhe al­liance would likely not sur­vive with­out state as­sis­tanceK

qhis is why f was so dis­ap­pointed when dovK Cor­bett pro­posed cut­ting all state sup­port to the qourette pyn­drome Al­liance in his bud­getK f wish to pub­licly rec­og­nize and thank oepK Murt for buck­ing the gov­er­nor on this is­sue, and em­phat­i­cally speak­ing out at a re­cent Capi­tol bud­get hear­ing in sup­port of restor­ing qourette’s fund­ingK

qhomas Murt has be­come a cham­pion for chil­dren with qourette’s syn­drome and has earned my ap­pre­ci­a­tion and grat­i­tudeK

Mar­i­lyn qocci kew Cum­ber­land, maK

••• qo the ed­i­torW

On be­half of the more than P,MMM chil­dren and adults liv­ing with qourette’s syn­drome in the Com­mon­wealth of menn­syl­va­nia, f wish to thank and com­mend state oepK qhomas Murt for cham­pi­oning the cause to re­store fund­ing to the menn­syl­va­nia qourette pyn­drome Al­lianceK

qhe mA qourette pyn­drome Al­liance pro­vides sup­port to those with qp by pro­vid­ing in­for­ma­tion, train­ing and dis­abil­ity ad­vo­cacy through­out the stateK qh­ese ser­vices are crit­i­cally im­por­tant to those with qp and their fam­ily mem­bers but also to their schools and com­mu­ni­tiesK

qourette’s syn­drome is a mis­un­der­stood neu­ro­log­i­cal con­di­tion af­fect­ing P- NM in N, MMM chil­dren and caus­ing a per­son to have un­con­trolled move­ments and vo­cal­iza­tionsK qh­ese symp­toms oc­cur re­peat­edly, change with­out fore­warn­ing and of­ten in­crease with stressK pymp­toms can be mild, such as blink­ing and throat clear­ing, to more se­vere, such as full body twitches or sud­den scream­ingK Of­ten un­til their teach­ers and class­mates un­der­stand or are trained, many chil­dren with qp are rep­ri­manded

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