‘Human Project’ will ask 10,000 people to share their life’s data
NEW YORK | Wanted: 10,000 New Yorkers interested in advancing science by sharing a trove of personal information, from cellphone locations and credit-card swipes to blood samples and life-changing events. For 20 years.
Researchers are gearing up to start recruiting participants from across the city next year for a study so sweeping it’s called “The Human Project.” It aims to channel different data streams into a river of insight on health, aging, education and many other aspects of human life.
“That’s what we’re all about: putting the holistic picture together,” says project director Paul Glimcher, a New York University neural science, economics and psychology professor.
There have been other “big data” health studies, and the National Institutes of Health plan to start full-scale recruitment as soon as this fall for a million-person project intended to foster individualized treatment.
But the $15 million-a-year Human Project is breaking ground with the scope of individual data it plans to collect simultaneously, says Vasant Dhar, editor-in-chief of the journal Big Data, which published a 2015 paper about the project.
“It is very ambitious,” says Mr. Dhar, an NYU information systems professor.
Participants will be invited to join; researchers are tapping survey science to create a demographically representative group.
They’ll start with tests of everything from blood to genetics to IQ. They’ll be asked for access to medical, financial and educational records, as well as cellphone data such as location and the numbers they call and text. They’ll also be given wearable activity trackers, special scales and surveys via smartphone. Follow-up blood and urine tests — and an at-home fecal sample — will be requested every three years.
Participants get $500 per family for enrolling, plus a say in directing some charitable money to community projects.
Researchers hope the results will illuminate the interplay between health, behavior and circumstances, potentially shedding new light on conditions ranging from asthma to Alzheimer’s disease.
Their excitement comes with the responsibility of safeguarding the digital savings of a lifetime.
Protections include multiple rounds of encryption and firewalls. Outside researchers won’t be able to see any raw data, just anonymized subsets limited to the information they need. They’ll take nothing with them but their analyses — by hand, since the analyzing computers aren’t connected to the internet, Mr. Glimcher said.
Lee Tien, a senior staff attorney at the digital rights group Electronic Frontier Foundation, credits the Human Project researchers with taking security seriously.
But he wonders whether authorities might seek to get at the information for investigations, though Mr. Glimcher maintains that the researchers could protect it from anything but major terrorism probes.
Mr. Glimcher knows The Human Project aspires boldly. In fact, its frequently-asked-questions list includes: “Is this possible? Are you crazy?”
He points to one of medicine’s most storied research efforts: The Framingham Heart Study, launched in 1948. Some 15,000 residents of Framingham, Massachusetts, have been examined over the years. The initiative has fueled more than 1,200 studies and revealed that blood pressure, cholesterol and smoking were linked to heart disease risk.
Researchers are gearing up to start recruiting 10,000 New Yorkers for a study called “The Human Project.” They’ll be asked to share personal information for 20 years.