The ACC one-two punch.

Wellness Update - - CLEVLAND CLINIC -

The de­gree to which some­one with ACC is af­fected de­pends on a trump card as­so­ci­ated with the dis­or­der. In about 30 per­cent of the cases, the cor­pus cal­lo­sus— or the bridge—can be par­tially de­vel­oped or it could be miss­ing. What ex­ag­ger­ates the ef­fects of ACC is when there is another prob­lem in the brain de­vel­op­ment. This hap­pens in about 70 per­cent of the cases and it’s called com­plex ACC. Dr. Ten­ni­son points out that he has seen chil­dren with no other iden­ti­fi­able ab­nor­mal­ity and they child still shows sub­stan­tial de­vel­op­men­tal dif­fi­cul­ties. In a ma­jor­ity of the com­plex ACC cases, the miss­ing bridge isn’t the ma­jor con­cern. As with most con­gen­i­tal birth de­fects, when one anom­aly is dis­cov­ered, oth­ers can be present. The miss­ing bridge of ACC is of­ten a red flag that sig­nals the child has been de­liv­ered a one-two punch. “What that sec­ond punch is we don’t al­ways know,” said Dr. Ten­ni­son. “It’s this hid­den wild card that determines the de­gree at which the pa­tient is af­fected. Many times we can’t find that other el­e­ment. We just see how it af­fects the pa­tient’s mo­tor skills and men­tal de­vel­op­ment as he or she grows. It’s at about age 5, that the ex­tent of the dis­or­der can be gauged be­cause this is the age a re­li­able IQ test can be ad­min­is­tered”. Dr. Ten­ni­son ex­plains it’s this un­known that af­fects the ul­ti­mate out­come of the disease. Cop­ing with the disease means early de­tec­tion so train­ing can start. ACC is at a dis­ad­van­tage be­cause they don’t have the skills or abil­ity to keep up, so they can ill af­ford to get be­hind. They need ex­tra time learn­ing ba­sic mo­tor skills and men­tal func­tions. The sooner they are di­ag­nosed, the bet­ter their chances are of get­ting the most out of their abil­i­ties and giv­ing them more op­por­tu­ni­ties to be “Nor­mal”.

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