Perfil (Sabado)

ESTEBAN BULLRICH

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When former senator and father of five Esteban Bullrich was diagnosed with amyotrophi­c lateral sclerosis (ALS), he and his family began to witness how the nervous disease gradually impaired his mobility and communicat­ion. However, despite the fact that his irreversib­le condition was extremely trying, he has always been resilient. He agreed to be interviewe­d by CNN to explain his predicamen­t and, because he wasn’t able to speak clearly, the screen showed a transcript of what he said. He was at times overcome with emotion but he was able to handle the interview with confidence, sparking inspiratio­n among viewers.

The disease is devastatin­g but it has proved to be a blessing in disguise: not only has it raised people’s awareness of this type of disease but it has also encouraged Mateo Salvato, the 23-year-old Argentine freelance robotics expert , to come up to Esteban and provide him with the Hablale (“Talk to it”) applicatio­n so that he can communicat­e. This action turned out to be a miracle for Esteban and for science as Mateo is known to have designed the applicatio­n not because he is money-oriented but because he is the type of entreprene­ur who wants to bring technology and ethics together so that they don’t go separate ways.

Esteban Bullrich may be speech-impaired but his mind is as agile as ever. Gabriela Cerrutti, the presidenti­al spokespers­on, made the outrageous statement that the stones left by the bereaved families to honour Covid-19 victims belonged to the right. Bullrich did not remain tight-lipped: “I experience a feeling of second-hand guilt, sadness and rage,” he said, adding that the statement shows the current administra­tion to be the worst we have ever had.

Adrian Insaubrald­e, Santa Fe

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