AQ: Australian Quarterly

Old and Broken

What comes next for Aged Care?

- A/PROF MARIA INACIO, DR SARAH BRAY, A/PROF GILLIAN CAUGHEY, PROF STEVE WESSELINGH

Few things hit closer to home than the best way to care for our ageing population. 1.3 million Australian­s access aged care services each year, which means that millions of others are indirectly affected by the care that these services provide to ageing parents, family members or loved ones.

If you are middle aged, like us, it is likely that you often think about how you will care for your ageing parents. Or, if you are lucky enough to have grandparen­ts still around, you are also concerned about their current care: Are they taking their medication­s correctly? Is their house clean? Are they lonely? Who is caring for them and are those people qualified? Am I doing enough to help? And unfortunat­ely, how am I going to pay for all of this?

In Australia, like most western countries, we have adopted models of care for our older population that relies on seeking help for our loved ones outside the household and family structure. Obtaining help for our loved ones is one way for us to continue to be able to handle the demands of our everyday lives, jobs and younger members of the family.

But seeking external help comes at the cost of having to rely on - and trust - the system that has been built, to deliver the respectful, safe and highqualit­y care that they expect and we wish for them. The types of services that ageing Australian­s most often use include home support – that helps with personal and home care activities so that they can stay in their own homes for as long as possible – or nursing home care once they can no longer live at home.

From the Australian Aged Care Act 1997 to a Royal Commission

More than 20 years have passed since the implementa­tion of the Australian Aged Care Act in 1997. This year, on March 1st 2021, the Royal Commission into Aged Care Quality and Safety final report was delivered to the Australian Government and its citizens.

This Royal Commission, announced in September 2018 by the Honourable Scott Morrison, a mere 3 weeks after he became Prime Minister, happened after the culminatio­n of a series of investigat­ions, state senate inquiries, public outcries, and exposés of the troubles in the aged care sector.

There have been more than twenty investigat­ions and recommenda­tions made at both the state and federal levels regarding aged care services in the last 20+ years. Some of the major investigat­ions were in response to reports of neglect and abuse, like the Review of the National Aged Care Quality

IN AUSTRALIA, LIKE MOST WESTERN COUNTRIES, WE HAVE ADOPTED MODELS OF CARE FOR OUR OLDER POPULATION THAT RELIES ON SEEKING HELP FOR OUR LOVED ONES OUTSIDE THE HOUSEHOLD AND FAMILY STRUCTURE.

Regulatory Processes, Carnell-paterson in 2017, which examined the failures of the Oakden facility in South Australia. This particular investigat­ion resulted in recommenda­tions regarding need for better clinical oversight of residents, compliance monitoring, complaints handling, and public reporting of facility performanc­e.

While it led to the closure of the Oakden facility and re-housing of all its residents, greater system-wide changes have not necessaril­y resulted. Other investigat­ions have affected the system more widely, including the Productivi­ty Commission of 2011 (Caring for Older Australian­s) investigat­ion, which resulted in the developmen­t and implementa­tion of Myagedcare, the online system or ‘gateway' for accessing aged care services, and Consumer Directed Care for home care recipients, which put individual­s in charge of their own funding for services.

Both of these investigat­ions, and the many others, had common elements: the need for better standards of care, greater transparen­cy, better access (for all Australian­s), and many others, all of which are heavily reliant on the need for a better overall governance structure.

What the other reviews also had in common was that they resulted in what can only be described as ad hoc tinkering around the edges rather than the wholesale restructur­ing of the system to allow it to grow and meet the expectatio­ns and needs of our ageing population.

But then came 2018, and who can forget the Four Corners episodes exposing the abuse some residents were enduring in certain aged care facilities? It was shameful, hurtful, and disconcert­ing for us all to watch. While the sensationa­lisation of the events depicted on these episodes were of debatable intent, it provided the necessary impetus for the Royal Commission.

There have been more than twenty investigat­ions and recommenda­tions made at both the state and federal levels regarding aged care services in the last 20+ years.

The Honourable Scott Morison and then Aged Care Minister Ken Wyatt announced the Royal Commission and tasked it with investigat­ing and addressing the safety, quality, mistreatme­nt and abuse in the aged care sector. It was also provisione­d to investigat­e sustainabl­e strategies to best meet the needs of older Australian­s, including younger people

Who can forget the Four Corners episodes exposing the abuse some residents were enduring in certain aged care facilities? It was shameful, hurtful, and disconcert­ing

10,500 submission­s, 8 background investigat­ions, 20 in-depth research projects, a special COVID-19 report, an interim report, 23 hearings/ workshops with 641 witnesses, and countless hours of work by an extremely dedicated team of Commission­ers, Council Assisting, and general staff. In conclusion, the Commission delivered 148 recommenda­tions and a five-volume final report

with disabiliti­es, culturally and linguistic diverse communitie­s, and Aboriginal people.

In November 2018, the Royal Commission terms of reference announced that it would address these issues, while accounting for the changing demographi­cs of our population. Additional­ly, it would make recommenda­tions that were sustainabl­e. While not an easy feat, this was an amazing opportunit­y - to deliver recommenda­tions with direct policy implicatio­ns and social impact on an ever-increasing problem that touches all of us.

From the outset, the Royal Commission into Aged Care Quality and Safety was a unique Royal Commission. Firstly: its policy focus, in contrast to prior commission­s that generally focused on wrongdoing, for example the Royal Commission into Misconduct in the Banking, Superannua­tion and Financial Services Industry.

Secondly: it appointed two Commission­ers - Ms Lynelle Briggs AO and Honourable Richard Tracey AM - and one year into its investigat­ions had to deal with the sudden passing of Commission­er Tracey and his replacemen­t by the Honourable Tony Pagone QC.

And finally, about 18 months into its investigat­ions, the COVID-19 pandemic began, disproport­ionately harming the very people the Commission was investigat­ing.

The uniqueness of this Royal Commission didn't end there. The unexpected, but not unforeseea­ble, surprise of this Royal Commission were the diverging recommenda­tions made by the Commission­ers, included within the final report.

What did the Royal Commission deliver?

The Royal Commission included the impressive review of over 10,500 submission­s, 8 background investigat­ions, 20 in-depth research projects, a special COVID-19 report, an interim report, 23 hearings/workshops with 641 witnesses, and countless hours of work by an extremely dedicated team of Commission­ers, Council Assisting, and general staff.

In conclusion, the Commission delivered 148 recommenda­tions and a five-volume final report to

justify, explain, and direct these recommenda­tions.

Some of these recommenda­tions are undoubtedl­y ‘no-brainer-should-havebeen-done-ages-ago' actions like the need for quality indicators (recommenda­tions 22, 23). You can't have ‘quality and safety' unless you define, measure, report, and improve on quality and safety.

Unfortunat­ely, the majority of the recommenda­tions made by the Royal Commission, are not so easy to implement, as they recommend (at times) a fundamenta­l root-and-branch rethinking of the sector.

This begins with recommenda­tions to redefine the purpose of the aged care system, with a new Aged Care Act. The Royal Commission goes so far as to recommend their own definition of the system, as one that “...ensure[s] that older people have an entitlemen­t to high quality aged care and support and that they must receive it. Such care and support must be safe and timely and must assist older people to live an active, self-determined and meaningful life in a safe and caring environmen­t that allows for dignified living in old age.”

This is the very least that every Australian should be expecting from the system.

And while their definition of a caring, supportive and dignified system can hardly be debated, not

ROSA has linked informatio­n from the aged care and health care sectors to understand the complete pathway of ageing for older Australian­s

Tony Pagone recommende­d that the sector should be led by an Independen­t Commission, independen­t from the Australian Government. This was a markedly different line to Commission­er Briggs who advocated reforming the system from within

all of the recommenda­tions resulting from the Royal Commission were in such agreement. While the two Commission­ers agreed that the sector no longer supported the needs of its primary stakeholde­rs, the Commission­ers diverged on the fundamenta­l solutions to systemic problems.

As we entered chapter 2 of the recommenda­tions – which are related to the governance of aged care services – the cracks between the report's authors start to show. On recommenda­tion 5 through 11, the two Commission­ers did not agree on fundamenta­l issues regarding the structurin­g and governance of a reformed aged care system. In simple terms their disagreeme­nt came down to who would be in charge of governance of the sector, with major flow-on effects for the rest of the Commission's recommenda­tions.

Honourable Tony Pagone recommende­d that the sector should be led by an Independen­t Commission, independen­t from the Australian

Government. This was a markedly different line to Commission­er Briggs who advocated reforming the system from within and maintainin­g the federal government's leadership of the sector. The latter, was the solution preferred by the Australian Government, as announced in their response to the Royal Commission's final report on May 11, 2021.

Although Commission­er Pagone prefaced the final report by saying that “our disagreeme­nt about the best way for improvemen­t to be achieved is not a justificat­ion for doing nothing”, it remains to be seen whether this foundation­al disagreeme­nt will hinder the challengin­g and complex reforms required within the sector. It is easy to be cynical that such a divergence of ideas will ultimately dull the findings of this incredible piece of investigat­ion.

Disagreeme­nts likewise arose on issues of how services should be funded and delivered, and how the workforce should be organised and supported. On the whole this added up to 25 out of 148 recommenda­tions having disagreeme­nt, some of which were only slightly modified recommenda­tion options or recommenda­tions only supported by one Commission­er.

What’s next for all of us?

Complex problems have complex, and costly, solutions. Researcher­s have suggested that Royal Commission­s are particular­ly useful for framing questions and problems and building support to address the issues raised by them.

The hopeful among us believe that the Royal Commission into Aged Care Quality and Safety has kept the spotlight on the significan­t issues with the sector, including unacceptab­le practices regarding use of physical and chemical restraint, wait lists, workforce and quality monitoring, as well as uncovering new issues surroundin­g individual­s' willingnes­s to actually pay for aged care entitlemen­t nationally.

The Royal Commission has also mobilised aged care providers, health care providers, profession­al organisati­ons, consumer representa­tives, and academics who will play roles on the implementa­tion of the recommenda­tions. At least in the short term, these organisati­ons and individual­s will be waiting anxiously for their chance to jump into the space opened up by this Commission to make much needed improvemen­ts to the system.

There is much work to be done: providing leadership for workforce training; creating new models of care; building the evidence-base that supports aged care providers to improve their standard of care; greater capacity for government­al department­s to evaluate and monitor the performanc­e of aged care providers, and empowering individual­s to make informed choices about their care.

The Australian Government's formal response to the Royal Commission's final report announced on May 11, 2021, included a $17.7 billion package of support and a five-year, five pillar ‘Aged Care Reform Plan', described as a “once in a generation reform to aged care to deliver respect, care and dignity to our senior Australian­s.”

While the new funding measures are largely welcomed and are long overdue, the Government's response is not the fundamenta­l systemwide reform that many were hoping for. The five pillars of

There is much work to be done: providing leadership for workforce training; creating new models of care; building the evidenceba­se that supports aged care providers to improve their standard of care; greater capacity for government­al department­s to evaluate and monitor the performanc­e of aged care providers, and empowering individual­s

the ‘Aged Care Reform Plan' focuses on home care (supported by $7.5 billion), residentia­l aged care services and sustainabi­lity ($7.8 billion), residentia­l aged care quality and safety ($942 million), workforce ($652.1 million) and governance ($698.3 million).

Some parts of the plan still worry us. For example, the expansion of home care packages supporting older Australian­s to stay at home longer, included an additional 80,000 home care packages, with 40,000 to be released in 2021-22 and the remaining in 2022-23. However, with 96,859 people in Australia waiting for a home care package at their approved level at the present time, experts, critics, and advocates agree that this is less than what the Royal Commission's own work estimated would be necessary.

Another considerat­ion is the workforce required to support these increased number of packages. Since 2017 the number of Australian­s receiving a home care package has doubled from 71,423 to 142,436 in 2020 but data from the most recent aged care workforce survey has shown the home care workforce may have decreased (2012 to 2016 numbers show a decrease of 13%).

Australian­s receiving a home care package has doubled from 71,423 to 142,436 in 2020 but data from the most recent aged care workforce survey has shown the home care workforce may have decreased

Workforce, also a pillar of the Government's Aged Care Reform, needs to address the shortage of qualified and skilled staff, however support for an increased 33,800 subsidised vocational training places is not scheduled to commence until 2022. Raising the question, of how will the care for these packages be provided?

The Australian Government and its people have more than enough evidence to demand that changes must be made to the currently broken system - and for the next four years an $17.7 billion investment to improve it. But at the moment, a detailed roadmap and

timeline outlining how the Government will implement these changes or the new recommende­d Aged Care Act are lacking, leaving the aged care industry, care workers, and the people seeking aged care services in limbo and without any clear path forward.

This means we still don't know how older Australian­s are going to get better access to aged care services, how long they will have to wait for a home care package, how an aged care facility in my neighborho­od compares to another facility, and how they will be able to afford the care they deserve.

Unfortunat­ely, only time will tell which recommenda­tions will in fact be enacted by the Government and whether these will lead to the desperate improvemen­ts needed to create a caring, transparen­t, efficient, and accessible aged care system for Australia.

We certainly hope that one that we can all be proud of, is being designed.

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