JOIN THE PICNIC TO HELP HEAL
Alicia Evans encourages woman to join in picnic
THE symptoms can cause crippling pain and the road to diagnosis can be long, but one thing helping all women and girls suffering from endometriosis is connecting with others.
That’s the message from Endometriosis Australia ambassador Alicia Evans, who is urging women and girls with the common disease to come to the EndoSister Picnic at Moffat Beach.
Hosted by cafe One Block Back, the EndoSister Picnic will be held on Saturday, March 30 from 10am–1pm.
Endometriosis is a disease that causes pain and/or infertility.
It is present when the tissue that is similar to the lining of the uterus occurs outside the uterus.
People who suffer from the condition have different symptoms, which can make it hard to diagnose, Mrs Evans said.
Through her work as a personal trainer, Mrs Evans had spoken to many women with endometriosis – which is lucky, she said, as it meant she realised her condition before her GP did.
“It wasn’t until three or four years ago I started getting some symptoms that didn’t feel right,” she said.
“I was a normal, active person but I was getting really bad acne in certain spots, I was fatigued a lot.
“I would have a normal 8-9 hour sleep every night and then feel tired and still be able to sleep 2-3 hours the next day – easily.”
She was training for a triathlon at the time and her doctor thought the physical exertion explained her tiredness, but Mrs Evans thought it was above and beyond what other triathletes she knew were experiencing.
“Some people have a really long experience but for me it wasn’t years and years of being told I had different things,” she said.
“But I did have about a year of going back and forth getting blood tests and being told I was just tired.”
Mrs Evans did her own research and asked her doctor for an ultrasound of her uterus to check for endometriosis and polycystic ovary syndrome.
The ultrasound identified a cyst, which she was also able to have removed surgically, but the surgeon also found evidence of endometriosis and removed it last June.
“When they went in they found moderate endometriosis – there is mild, moderate and severe endometriosis,” she said.
“It was definitely a lot more than they thought they were going to find, because they didn’t think I had it at all.”
DIFFERENT SYMPTOMS: Alicia Evans (and inset) suffers from endometriosis, which up to 1 in 10 women struggle with.