Brave boy needs a hand
Jaiven faces brain surgery
FOR most 10-year-olds, an act of bravery boils down to a moment requiring a step out of their comfort zone.
But for Chinchilla youngster Jaiven Kross, the step is more of a leap as he prepares for surgery to remove the right side of his brain.
A fundraiser was held at Chinchilla Bowls Club earlier this month to help Jaiven tick off activities from his bucket list before undergoing the surgery.
“He loves being outside and would love to go to a theme park, deep sea fishing or maybe a family holiday before he goes in,” Jaiven’s mother Rebbekkah Walker said.
Jaiven was born with Sturge-Weber syndrome, a rare condition characterised by a port-wine stain over his forehead and right eye.
The birthmark is caused by an over-abundance of capillaries collected on the brain, causing calcification of tissue and loss of nerve cells in his cerebral cortex.
When he started experiencing daily seizures as a result at four months old, doctors diagnosed him with the condition and glaucoma.
Ms Walker said they did not foresee the surgery needing to be undertaken when he was a baby.
“But as he has gotten older, the doctors expressed concern the seizures will worsen and medication will have to be continuously increased,” Ms Walker said.
The threat of Sudden Unexpected Death in Epilepsy is posed with each seizure Jaiven has.
“By removing the right side of the brain, there is a 90 per cent chance Jaiven will be seizure-free with no damage to the left side of the brain,” Ms Walker said.
“This will result in no medication eventually, but will also mean the left side of his body will be in paralysis.
Over an expected four to eight weeks’ recovery time spent in Brisbane, Jaiven will take on the tremendous task of learning to walk and talk again.
Ms Walker will have to give up two jobs to care for Jaiven, while her husband also will be taking time off to care for their other four children.
“We are hoping to be home in Chinchilla for Christmas and to continue with rehab,” Ms Walker said.
“Jaiven just has a really big heart and our family is overwhelmed with the amazing support from our community.’’
If you would like to help Jaiven and his family a helping hand, attend upcoming Lions fundraisers or donate by PayPal to Jaiven08@live.com.au.
HELPING OUT: Chinchilla locals raise money for Jaiven Kross at the bowls club earlier this month.