Brave boy needs a hand

Jaiven faces brain surgery

Chinchilla News - - NEWS - Amani Vassiliou Amani.Vassiliou@chin­chillanews.com.au

FOR most 10-year-olds, an act of brav­ery boils down to a mo­ment re­quir­ing a step out of their com­fort zone.

But for Chinchilla young­ster Jaiven Kross, the step is more of a leap as he pre­pares for surgery to re­move the right side of his brain.

A fundraiser was held at Chinchilla Bowls Club ear­lier this month to help Jaiven tick off ac­tiv­i­ties from his bucket list be­fore un­der­go­ing the surgery.

“He loves be­ing out­side and would love to go to a theme park, deep sea fish­ing or maybe a fam­ily hol­i­day be­fore he goes in,” Jaiven’s mother Rebbekkah Walker said.

Jaiven was born with Sturge-We­ber syn­drome, a rare con­di­tion char­ac­terised by a port-wine stain over his fore­head and right eye.

The birth­mark is caused by an over-abun­dance of cap­il­lar­ies col­lected on the brain, caus­ing cal­ci­fi­ca­tion of tis­sue and loss of nerve cells in his cere­bral cor­tex.

When he started ex­pe­ri­enc­ing daily seizures as a re­sult at four months old, doc­tors di­ag­nosed him with the con­di­tion and glau­coma.

Ms Walker said they did not fore­see the surgery need­ing to be un­der­taken when he was a baby.

“But as he has got­ten older, the doc­tors ex­pressed con­cern the seizures will worsen and med­i­ca­tion will have to be con­tin­u­ously in­creased,” Ms Walker said.

The threat of Sud­den Un­ex­pected Death in Epilepsy is posed with each seizure Jaiven has.

“By re­mov­ing the right side of the brain, there is a 90 per cent chance Jaiven will be seizure-free with no da­m­age to the left side of the brain,” Ms Walker said.

“This will re­sult in no med­i­ca­tion even­tu­ally, but will also mean the left side of his body will be in paral­y­sis.

Over an ex­pected four to eight weeks’ re­cov­ery time spent in Bris­bane, Jaiven will take on the tremen­dous task of learn­ing to walk and talk again.

Ms Walker will have to give up two jobs to care for Jaiven, while her hus­band also will be tak­ing time off to care for their other four chil­dren.

“We are hop­ing to be home in Chinchilla for Christ­mas and to con­tinue with re­hab,” Ms Walker said.

“Jaiven just has a re­ally big heart and our fam­ily is over­whelmed with the amaz­ing sup­port from our com­mu­nity.’’

If you would like to help Jaiven and his fam­ily a help­ing hand, at­tend up­com­ing Lions fundrais­ers or do­nate by Pay­Pal to Jaiven08@live.com.au.

PHOTO: CON­TRIB­UTED

HELP­ING OUT: Chinchilla lo­cals raise money for Jaiven Kross at the bowls club ear­lier this month.

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