Ai­dan hard to keep down

Cockburn Gazette - - NEWS -

AI­DAN Dlugi is as en­er­getic, friendly and in­quis­i­tive as any other five-yearold.

The young Suc­cess Pri­mary School stu­dent is al­ready a lit­tle celebrity among his peers and teach­ers, but de­spite his happy de­meanour, ev­ery­day ac­tiv­i­ties such as talk­ing and walk­ing are a chal­lenge for the oth­er­wise vi­va­cious lit­tle boy.

Ai­dan has mul­ti­ple chro­mo­so­mal ab­nor­mal­i­ties, with mo­saicism of four of his chro­mo­somes, a com­bi­na­tion which has never been seen and has no name but has led to global de­vel­op­ment de­lay, hear­ing im­pair­ments and leg mus­cle de­vel­op­ment is­sues, among other com­pli­ca­tions.

But Ai­dan’s mother Ta­mara Dlugi said de­spite the ad­ver­sity he faced, noth­ing could bring Ai­dan’s spirit down.

“Ai­dan just keeps on go­ing; he doesn’t let his con­di­tion stop him,” she said.

“Our nick­name for him is ‘Ai­dana­tor the In­ves­ti­ga­tor’ as he is very in­quis­i­tive of the world around him and he is fas­ci­nated with tech­nol­ogy and but­tons; if some­thing has but­tons, he won’t leave it alone un­til he can work out what it does.

“He is ad­ven­tur­ous, cute, lov­ing and car­ing and his smile re­ally does light up a room.

“He gets ev­ery­one wrapped around his lit­tle fin­gers very quickly.”

Last month, Ai­dan was recog­nised for his spir­ited ap­proach to life with a Li­ons Chil­dren of Courage Award, which ac­knowl­edges chil­dren who have shown brav­ery in the face of ad­ver­sity.

He was one of seven young Cock­burn chil­dren spon­sored by the Li­ons Club of Jan­dakot Lakes for the 2019 event.

Mrs Dlugi said she was amazed at just how strong her lit­tle boy was.

“He had to wear a hip brace for two years, but he still found a way to play and in­ter­act with ev­ery­one,” she said.

“He has to wear a bone con­duc­tion aid, head band hear­ing aid, but he knows he has to wear it to hear so he wears it.

“He has dif­fi­culty walk­ing but pushes him­self to walk as far as he can.

“As his par­ents, we are very proud of him be­ing recog­nised for be­ing him­self.

“We are proud of him for al­ways pro­gress­ing, al­ways achiev­ing more than ev­ery­one ex­pects and for al­ways be­ing pos­i­tive and happy.” A TROOP of Carey Bap­tist Col­lege stu­dents are putting the fi­nal touches on their moves as they pre­pare for an in­ter­na­tional cheer­lead­ing com­pe­ti­tion.

Forty-two stu­dents from the col­lege’s Har­ris­dale cam­pus are off to Eng­land to com­pete in next month’s Fu­ture Cheer In­ter­na­tion­als com­pe­ti­tion be­fore head­ing across the Chan­nel for a per­for­mance at Dis­ney­land Paris.

Carey cheer­lead­ing direc­tor Amy Tay­lor said the stu­dents had been pre­par­ing dili­gently for the com­pe­ti­tion, train­ing three times a week be­fore school and per­form­ing in smaller week­end events and show­cases.

“The com­pe­ti­tion will be marked on a num­ber of el­e­ments, the main four be­ing build­ing skills, tum­bling skills, dance skills and over­all im­pres­sion,” she said.

“The team has trained and worked so hard to pre­pare for this oc­ca­sion and we are hop­ing to place in the top 10 in both the ju­nior and se­nior cat­e­gories.

“I think with all the ef­fort they have put in, if the rou­tine goes well on the day, this is very likely.”

The Fu­ture Cheer In­ter­na­tion­als com­pe­ti­tion runs from July 5 to 7.

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