About Down syndrome NSW

Down syndrome NSW (DS NSW) champions the rights of people with Down syndrome to have the same access to society as everyone else, such as health, education, work, family and being part of the community.

The organisation strives to achieve this by supporting people with Down syndrome, their families and carers, to be part of a strong and vibrant community that is informed, engaged and

active.ds NSW is an independent, not-for-profit organisation that was established in 1980 by parents of children with Down syndrome and is still proudly parent run. DS NSW provides:

A dedicated information and referral service for families and professionals

Peer to peer support to families at all life stages

A library resource centre housing the largest collection of information and resources about Down syndrome in Australia

Workshops and community building events for members

Professional development and training to education and health professionals

Representation of the interests and needs of people with Down Syndrome at state and federal levels

A voice for people with Down syndrome and their families in public discourse and policy development

Social networking and selfadvocacy opportunities for adults with Down syndrome through the Up! Club