Mercury (Hobart)

Wobbly awareness lap

- HELEN KEMPTON helen.kempton@news.com.au

A TASMANIAN is about to drive around Australia to raise money and review and rate tourist facilities on how accessible they are for people with disabiliti­es.

Muscular Dystrophy Tasmania committee member Warren Leahy – who has a neuromuscu­lar disorder – will soon take off on his Wobbly Boots big lap.

The accessibil­ity awareness initiative for travellers with a disability will jointly raise funds for Muscular Dystrophy Tasmania through the virtual lap concept on the Wobbly Boots website

Mr Leahy has a rare neuromuscu­lar disorder called Charcot Marie Tooth, which causes progressiv­e muscle wasting and weakness.

It starts at the extremitie­s of the body, the lower legs and hands, and works its way in on a slow, relentless and debilitati­ng march damaging the nerve tissue that allows muscles to work properly. To date, there is no treatment or cure for CMT.

It will take Mr Leahy six months to complete his 25,000km trip after which he will put together an Australia wide accessibil­ity database of

tourism and hospitalit­y venues.

“There is currently no single place for travellers with disabiliti­es to find out the accessibil­ity informatio­n they need when travelling, particular­ly in regional Australia,” Mr Leahy said.

“So during the Wobbly Boots Big Lap we will be assembling a database of accessibil­ity

informatio­n in each hospitalit­y and tourism venture we encounter with the view of incorporat­ing it into an app.

“Of course the database won’t be exhaustive, after all there’s only so much ground we can cover in six months, but once the app is developed we will open it up for all disabled travellers to add their

own experience­s and ratings on individual venues.

“Over time disabled travellers will benefit from real world reviews and informatio­n from those that have been at a particular venue before them.

“There are approximat­ely 4.4 million of us living with disability in Australia so it’s amazing a database like this

hasn’t been assembled before.”

The Wobbly Boots Big Lap starts in Hobart on May 23.

MDT is a volunteer-based organisati­on that is dedicated to making a positive difference in the lives of Tasmanian families affected by muscular dystrophy and allied neuromuscu­lar disorders.

 ?? ?? Warren Leahy and partner Kathy Johnson will drive around Australia to raise money for Muscular Dystrophy Tasmania.
Warren Leahy and partner Kathy Johnson will drive around Australia to raise money for Muscular Dystrophy Tasmania.

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