Isla ready for big move
ISLA Tander (10) has been a familiar face along the corridors of Princess Margaret Hospital for a decade.
The Piara Waters student was diagnosed at three weeks old with cystic fibrosis, a genetic disorder that affects the respiratory and digestive systems.
She attends the cystic fibrosis clinic at PMH, the only paediatric clinic of its kind in WA.
The clinic cares for about 200 children living with the disorder.
Isla said she was looking forward to the new Perth Children’s Hospital opening on June 10, particularly since it would have indoor and outdoor play spaces and a beanbag cinema.
“I have to come to PMH for appointments at the clinic every couple of months,” she said.
“It’s pretty boring sitting down all day waiting for all my appointments because there’s not much to do.”
Like Princess Margaret Hospital’s Megazone, Perth Children’s Hospital has a dedicated play space known as Fun on Four for patients and families.
It includes facilities and services to cater for all ages and abilities, including dedicated toddler and tween spaces, an arts/craft area, music area, library, sensory room, cinema and a huge outdoor space.
Isla said while the move to PCH would be daunting, not everything would change.
“I have gotten to know all the doctors and nurses at PMH over the years, so I am glad they are moving to the new hospital with me,” she said.
Isla’s mother Emma said people often did not understand the seriousness of the condition.
“Isla looks really well but she needs medication and physiotherapy every day,” she said.
“She has a whole team of specialists looking after her, including a designated nurse, doctor, dietician, physio and the whole respiratory department.
“We are really looking forward to the big move, particularly given that patients with cystic fibrosis will have their own room so the specialists will come to us rather than us having to move from section to section.”