Isla ready for big move

Stirling Times - - News - Sarah Brookes

ISLA Tan­der (10) has been a fa­mil­iar face along the cor­ri­dors of Princess Mar­garet Hos­pi­tal for a decade.

The Piara Wa­ters stu­dent was di­ag­nosed at three weeks old with cys­tic fi­bro­sis, a ge­netic dis­or­der that af­fects the res­pi­ra­tory and di­ges­tive sys­tems.

She at­tends the cys­tic fi­bro­sis clinic at PMH, the only pae­di­atric clinic of its kind in WA.

The clinic cares for about 200 chil­dren liv­ing with the dis­or­der.

Isla said she was look­ing for­ward to the new Perth Chil­dren’s Hos­pi­tal open­ing on June 10, par­tic­u­larly since it would have in­door and out­door play spa­ces and a bean­bag cinema.

“I have to come to PMH for appointments at the clinic ev­ery cou­ple of months,” she said.

“It’s pretty bor­ing sit­ting down all day wait­ing for all my appointments be­cause there’s not much to do.”

Like Princess Mar­garet Hos­pi­tal’s Mega­zone, Perth Chil­dren’s Hos­pi­tal has a ded­i­cated play space known as Fun on Four for pa­tients and fam­i­lies.

It in­cludes facilities and ser­vices to cater for all ages and abil­i­ties, in­clud­ing ded­i­cated tod­dler and tween spa­ces, an arts/craft area, mu­sic area, li­brary, sen­sory room, cinema and a huge out­door space.

Isla said while the move to PCH would be daunt­ing, not ev­ery­thing would change.

“I have got­ten to know all the doc­tors and nurses at PMH over the years, so I am glad they are mov­ing to the new hos­pi­tal with me,” she said.

Isla’s mother Emma said peo­ple of­ten did not un­der­stand the se­ri­ous­ness of the con­di­tion.

“Isla looks re­ally well but she needs med­i­ca­tion and phys­io­ther­apy ev­ery day,” she said.

“She has a whole team of spe­cial­ists look­ing af­ter her, in­clud­ing a des­ig­nated nurse, doc­tor, di­eti­cian, physio and the whole res­pi­ra­tory de­part­ment.

“We are re­ally look­ing for­ward to the big move, par­tic­u­larly given that pa­tients with cys­tic fi­bro­sis will have their own room so the spe­cial­ists will come to us rather than us hav­ing to move from sec­tion to sec­tion.”

Pic­ture: Andrew Ritchie­mu­ni­ d483471

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