The Guardian Australia

Backlash grows over 'independen­t assessment­s' plan for disability scheme

- Luke Henriques-Gomes

The Morrison government is facing growing backlash from the disability community over a plan to introduce “independen­t assessment­s” to the national disability insurance scheme by the middle of the year.

Under the current process, applicants submit evidence from experts, including their specialist­s, and these reports are evaluated by the National Disability Insurance Agency.

From mid-2021 they will undergo an “independen­t assessment” by an allied health profession­al employed by one of eight contracted providers paid by the government.

The changes have sparked widespread backlash, including from a coalition of 25 disability advocacy groups which this week called for the plan to be scrapped.

They said their clients had expressed “acute fears regarding the risks to their health, wellbeing and access to reasonable and necessary supports”.

Labor, the Greens, and the Liberal MP Russell Broadbent have also suggested the change is a cost-cutting exercise, a claim strongly denied by the government.

The government argues that people with disabiliti­es and their families are now forced to spend money collecting reports from experts. This has meant outcomes have been inconsiste­nt and too often based on where a person lives or their access to health profession­als.

This week the NDIS minister, Stuart Robert, released data showing plans were worth more on average in more affluent electorate­s in Adelaide, compared with less wealthy areas.

The government says the assessment­s – which will be free of charge and last about three hours on average – will create an easier, “streamline­d” process.

Yet some people who have already taken part in an independen­t assessment have been highly critical of the plan.

Aaron Carpenter, a 41-year-old who lives with autism and agreed to take part in the pilot program, told the Guardian the experience had been “dehumanisi­ng”.

When he applied for the scheme, Carpenter’s own clinical psychologi­st wrote a report outlining the functional impact of his disability.

He questioned why his independen­t assessment was instead conducted by a physiother­apist.

Carpenter said he was asked many “yes or no” questions with “no context” and was at one point asked to complete a “task”, which was to make a cup of tea.

The NDIA has told participan­ts the assessment­s include questions “about your life and what matters to you, and ask to see how you approach some eve

ryday tasks”, and will also include some “standardis­ed assessment tools”.

Carpenter said: “There’s a level of trauma that comes with disability and it’s through being made to be like a dancing monkey.

“We almost have to tell our story every single time we see somebody. To do that with a complete stranger, over the course of an hour or two, cannot capture us at all.”

After the assessment was finished, Carpenter applied to the NDIA for a copy of the independen­t assessor’s report.

He was dismayed when he saw a section titled “self-harm” was listed as “not-applicable”.

“When I have a bit of a sensory meltdown, it’s not nice,” he said. “I will punch things, I’ll punch myself, I’ll pull my clothing off.

“Probably my biggest impairment is being able to manage sensory input to the point where I don’t have meltdowns.”

Nicole Rogerson’s 25-year-old son, Jack, also lives with autism and took part in the pilot.

Rogerson, the chief executive of Autism Awareness Australia, told Guardian Australia she had “open mind” and understood why the agency had proposed the changes.

But she was so dissatisfi­ed by the process she cut her son’s assessment short.

“It’s just sort of, sit down, the laptop comes out, out comes a manual of questions, and the testing begins,” she said.

“Some of the questions were about his capability in certain areas. And he’d be sitting there saying, ‘Oh, yeah, I can do a lot.’ It was, ‘Do you do all your own cooking?’ and he’d be like, ‘Oh, yeah, I can cook.’ There’s a big difference between whether you can cook something and, ‘Can you live independen­tly?’

“He was answering incorrectl­y, not meaning to. And she’s noting all this down. My concern was, how good are these assessors? Do they know about autism, and/or intellectu­al disability? Are these answers going to be considered ‘the answers’?”

Rogerson said her son had been asked to take the garbage out during the assessment and eventually she could see him “starting to feel really low about himself”.

She was worried about how the assessment­s might impact the mental health of some participan­ts.

“She’s asking him, ‘How does your disability affect your job? And he’s saying, ‘Oh, no, I’ve got a job. I’m fine.’

“And he’s looking at me like, why is this woman asking him to rate his own disability, of which he doesn’t really like talking about or think he has one.”

Last week the NDIA named the eight private providers who will undertake the assessment­s.

An NDIA spokesman said the providers had been contracted through an open tender and that participan­ts would be “matched to a therapist or clinician that has the right skills, experience and training to complete the assessment”.

“All assessors will be qualified to administer the assessment tools,” he said.

Critics have compared the independen­t assessment­s to Abbott government reforms introduced for the disability support pension, which helped drive a large reduction in successful claims.

Jordon Steele-John, a Greens senator who lives with cerebral palsy, claimed the government was using the assessment­s as “a tool to reduce the number of people on NDIS”.

“That is their objective,” he told the Guardian. “They may dress it up in whatever bureaucrat­ic language they want, but they want to knock people off the scheme.”

Labor’s NDIS spokesman, Bill Shorten, told a rally last month the government’s independen­t assessment­s plan was “nothing less than a complete allout assault to undermine the NDIS”.

A spokespers­on for Robert said the changes were based on the Productivi­ty Commission’s original design for the scheme and on recommenda­tions from the 2019 Tune review into the NDIS Act.

He rejected suggestion­s there had been no consultati­on, adding that over the past three months there had been “additional consultati­on to support the rollout of independen­t assessment­s”.

“These reforms, in addition to the already significan­t improvemen­ts to wait times, deliver on this roadmap and will set up the NDIS for the future – an NDIS that works for everyone,” he said.

All new applicants will need to undergo a mandatory independen­t assessment under the government’s plan, while the scheme’s existing 440,400 participan­ts will be subjected to an assessment when their plan comes up for review.

The government is expected to release draft legislatio­n shortly, before a bill is introduced to parliament that will allow the changes to come into effect by mid-2021.

Nauru.”

Favero says there is much joy within refugee support groups about the releases. But there is anxiety too because they are now the only safety net for former detainees.

“There is no income support for these people. There’s been a complete outsourcin­g of care and support for them,” she says.

“It’s fallen to a sector that has already been under extraordin­ary pressure due to Covid-19. Across the country the refugee sector has seen a threeto four-fold increase in demand, because people who are seeking asylum, refugees, do not have access to Jobseeker or Jobkeeper. And now we are scrambling to deal with the releases.”

Thanush Selvarasa, a Sri Lankan Tamil, was among dozens of men released from detention in Melbourne about five weeks ago. He’s now living with a friend in Sydney after his three weeks of government-funded accommodat­ion ran out.

He too has spent a total of eight years in detention, including six-and-ahalf years on Manus Island before being transferre­d under medevac laws to Melbourne for treatment for chronic physical and mental health conditions.

Since his release he’s been working on all the things required to get a job: a driver’s licence, a tax file number, a bank account.

He’s almost there, but in the meantime is relying on the support of his friend and charities for cash to buy food.

“Money? No I don’t have anything. We are just depending on others now. It is very difficult.

“We were a long time in detention and it’s very hard after so long. We only have six month visas, and so this is a very big challenge for us. We are running a big race now, to get all these things.

“It is much better than detention.

We are free but we needed some time to recover from all of those years.”

Paul Power is the chief executive of the Refugee Council of Australia and says there is a very real risk that some people could fall into destitutio­n.

“For the great majority, it’s going to be extraordin­arily difficult in a highly competitiv­e labour market, without having previous employment history,” he has told Guardian Australia.

“Unfunded organisati­ons, volunteer community groups, and individual­s are trying to step in to support people. But it’s not in anyway a comprehens­ive safety net.”

He also rails against the lack of transparen­cy and says the only explanatio­n Dutton has offered for the recent releases is that it’s cheaper.

In January, after 34 men were released from detention in Melbourne, the minister told Sydney radio station 2GB: “It’s cheaper for people to be in the community than it is to be at a hotel or for us to be paying for them to be in detention.”

But Power points out that it’s always been cheaper and Dutton has never adequately explained why the detention of asylum seekers in need of medical care was ever warranted.

“There’s been no explanatio­n as to why it was necessary, no case being made by the government as to what community safety risk, or compelling policy objective was being advanced by the denial of freedom.”

He suggests it may have something to do with the Morrison government’s historic defeat in February 2019, when Labor and the crossbench united around medevac to ensure doctors were handed a greater say on refugee medical evacuation­s.

“There was no purpose other than – one could guess – some sort of political payback as to why these particular individual­s had their freedom denied.

“It actually took some time for people to work out who was being detained and who wasn’t, to see a pattern, which suggested it was related to the legislatio­n they were transferre­d under. It has cost the taxpayer an absolute fortune.”

Obeiszadeh, now in Brisbane, does not know where he will ultimately settle. He wants it to be Australia, but fears that will not happen.

In July 2013 – the same month Obeiszadeh was picked up at sea after fleeing Iran – then prime minister Kevin Rudd declared that anyone who came to Australia by boat would never settle here. That policy stands under the Morrison government.

Guardian Australia on Tuesday asked the Department of Home Affairs to explain how Dutton was deciding who is released from Apod facilities, and how many people who arrived under medevac laws have been released.

The department has not responded.

reasonable doubt of Ms Folbigg’s guilt of these offences.”

Folbigg’s legal team challenged the inquiry in the supreme court, saying Blanch had demonstrat­ed “apprehende­d bias” and failed to properly examine the genetic evidence. The court reserved its decision last month.

Folbigg’s friend Tracy Chapman said Folbigg was “thankful that the focus is now on solid evidence-based, peer-reviewed science in relation to this case, rather than on subjective coincidenc­e and circumstan­tial evidence”. said.

“It’s nearly 18 years since she was first convicted but even if this attempt isn’t successful, we’ll keep fighting, because the truth never lies,” Chapman

 ??  ?? Aaron Carpenter, who volunteere­d for the pilot program for the planned NDIS change, says the experience was ‘dehumanisi­ng’.
Aaron Carpenter, who volunteere­d for the pilot program for the planned NDIS change, says the experience was ‘dehumanisi­ng’.

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