Giv­ing Telethon a good rev

The Sunday Times - - News - REGINA TITELIUS

KAIDE Strat­ton is of­ten told by his mum that good things come in small pack­ages.

Mea­sur­ing just over 1m, 10-year-old Kaide has Morquio A — a rare dis­ease that de­prives him of an im­por­tant en­zyme that breaks down ma­te­ri­als in his body.

The ge­netic con­di­tion is so rare that he shares it with just 20 other Aus­tralians.

With the help of an en­zyme re­place­ment therapy, Kaide is able to slow down the de­bil­i­tat­ing ef­fects of the dis­ease that can wreak havoc on his or­gans and stunt his growth.

It even makes the sim­ple act of walk­ing a daily strug­gle, but Kaide’s love of speed helps him keep up with his friends and fam­ily.

“I’m a bit of a rev head, any­thing that’s fast,” Kaide said.

“I love to go on the quad bikes and jet skis with my brother and sis­ter.

“I’m go­ing to do every­thing in my power to do every­thing I want. I won’t let this dis­ease stop me and when I grow older I’d like to be an engi­neer.”

As one of this year’s Lit­tle Telethon Stars, Kaide was treated to a close look of Barba­gallo’s sports cars ahead of Telethon on Oc­to­ber 20 and 21.

Help­ing Kaide pre­pare for the Telethon week­end are his mum Adele, dad Dar­ren, sis­ter Lexie, eight, and brother Caius, 12.

“I’m look­ing for­ward to Telethon, be­ing on TV and let­ting peo­ple know how im­por­tant it is to do­nate money to help kids who re­ally need it,” Kaide said.

Mrs Strat­ton said it had been a “roller­coaster” ride for Kaide and the fam­ily since he was di­ag­nosed when he was four years old.

“Be­ing cho­sen as a Lit­tle Telethon Star, Kaide sees him­self as a bit of a role model to show what kids like him go through ev­ery day in deal­ing with their con­di­tions,” Mrs Strat­ton said.

“He wants to show peo­ple it’s OK not to be the health­i­est per­son in the world but tackle things head on.”

Visit or phone 9344 0754.

Pic­ture: Daniel Wilkins

Need for speed: Kaide Strat­ton with a Lam­borgh­ini Hu­ra­can Per­for­mante at Barba­gallo Mo­tors in Os­borne Park.

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.