Kamloops, B.C., girl raises $1,500 selling lemonade to pay for brother's autism assessment
When eight-year-old Emma English discovered her younger brother would have to wait up to three years for an autism assess‐ ment, she took it upon herself to raise funds for a faster, private diagnosis.
A Sunday lemonade stand held in front of the family's Kamloops home earned a to‐ tal of $1,500, surpassing Em‐ ma's initial goal of $200.
"A lot of people gave me a lot of money," said Emma.
Despite describing her brother as "a little annoying," Emma said she wanted to step up and help him be‐ cause she cares about him.
Emma's mother, Cara En‐ glish, said her four-year-old son Bodhi needs a timely di‐ agnosis in order to attend kindergarten next year- a di‐ agnosis experts say is critical in order to access funding and support, but which in‐ creasingly requires multi-year waits to access.
"Helping him now will help him for life," said Cara. "If he can't do it until he is six or seven years old, he's lost all those years that he could have learned so many coping skills."
Bodhi is a fun, loving child, says Cara, but his emo‐ tional outbursts make him hard to manage.
She says several profes‐ sionals, including Bodhi's speech therapist and occupa‐ tional therapist, have recom‐ mended having him assessed for autism.
But she was told by their family doctor that an assess‐ ment through public health care would take two to three years, and a faster private as‐ sessment would cost close to $4,000.
Cara said Emma over‐ heard her talking about the problem one day.
"She said she wanted to help," said Cara. "She has a heart of gold."
Cara said she was shock‐ ed when she woke up on Sunday to discover a Face‐ book post she had made about the lemonade stand being shared widely.
She had provided her email address in response to one person who requested it to send a donation, and woke up to at least seven e-trans‐ fers.
She said several people with similar stories have stopped by the lemonade stand to share advice and provide donations.
"They've made my heart so happy because they care so much about helping a boy that they don't even know," said Cara.
"They've given me so much hope."
Early intervention criti‐ cal: expert
Grace Iarocci, director of Simon Fraser University's Autism and Developmental Disabilities Lab, says getting an early diagnosis is critical for children with autism.
Children who are diag‐ nosed with autism get ac‐ commodations and support that are crucial to their learn‐ ing and development, ac‐ cording to Iarocci.
"Every year that goes by [without a diagnosis], they're losing out on learning oppor‐ tunities," she said.
Children without a diag‐ nosis are also losing out on funding, according to Iarocci. The province provides up to $22,000 a year in interven‐ tion funding for those with autism under the age of six.
But for children over the age of six, that funding drops to a maximum of $6,000 per year.
"If they don't have the right approach and the right learning environment, they're going to be further delayed, potentially," she said.
Iarocci says that, about five years ago, families would have to wait one year for an autism assessment through the public health-care sys‐ tem.
But more recently she has heard from families across the province having to wait two to three years, like in Bodhi's case.
"Every year it seems to ex‐ pand, that wait time."
The Provincial Health Ser‐ vices Authority, which runs the B.C. Children's Hospital in Vancouver, said referrals for autism assessment are grow‐ ing and continue to exceed current capacity, making it challenging to meet demand.
"B.C. Children's Hospital leadership is saddened to hear about the experience of this family on their autism assessment journey," a spokesperson wrote in a statement. "We apologize to all families who are waiting for care."
The PHSA spokesperson said that going forward, it would look at solutions for families waiting for care, in‐ cluding by expanding the number of trained specialists to complete autism assess‐ ments.
Cara says while she still has more to save, the English family is well on their way to getting Bodhi a private autism assessment. She said she is excited for him to learn coping mechanisms and soci‐ al skills.
"He's gonna get to have friends finally, because he doesn't right now," said Cara.
"I can't even tell you how emotional I am. I've cried so much."