Organizat ions and studies

❚ The Longitudinal Early Onset Alzheimer’s Disease Study is still recruiting. leads- study. medicine. iu.edu

❚ For information on the Longitudinal Frontotemporal Lobar Degeneration, go to allftd.org

❚ For information on the MGH FTD Unit, go to ftd- boston.org

❚ For information on language dementias, visit the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University at brain. northwestern.edu/dementia/ppa/research. html

❚ Duet Partners in Health and Aging ( Duetaz.org) in Arizona has a new virtual program called Finding Meaning and Hope for family and caregivers of people with neurodegenerative diseases. The program features Pauline Boss, author of the book Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief and her work on ambiguous loss, for people dealing with experiences where there is “no verification of death or no certainty that the person will come back or return to the way they used to be.”

❚ For information on the Association for Frontotemporal Degeneration, go to theaftd.org