Ottawa Citizen

LITTLE PITY FOR A ‘SOB STORY’

Comments anger victims of thalidomid­e

- KRISTY KIRKUP

Members of a thalidomid­e survivor group are accusing Disabiliti­es Minister Kent Hehr of belittling them with insulting and degrading remarks during a face-to-face meeting earlier this year.

Hehr’s comments came as a shock to the group, which met with the minister Oct. 19 to press the federal government to make good on its commitment to provide compensati­on, said Fiona Sampson, herself a survivor who was at the meeting.

Sampson quoted the minister as saying, “’You don’t have it as bad today as adults as you did when you were kids,”’ and, “’everyone in Canada has a sob story. Lots of people have it bad in Canada — disabled people, poor people, not just you.”’

And when Hehr was told about the impact their condition was expected to have on their life spans, Sampson alleges he responded: “’So, you probably have about 10 years left now. That’s good news for the Canadian government.”’

In a statement Tuesday, Hehr denied flatly ever making the latter remark, and said the first two comments were “misconstru­ed.” He also apologized to the group last month after a letter of complaint was sent to the Prime Minister’s Office.

“As someone with a disability myself, it was certainly not my intention to offend anyone,” the statement said. “While some of my comments were misconstru­ed, as soon as I learned that my comments were felt to be offensive, I immediatel­y called the organizati­on directly and apologized.”

Hehr is a quadripleg­ic who uses a wheelchair. He was injured at the age of 21 while a bystander in a driveby shooting in 1991.

Sampson also accused Hehr of touching a survivor in an “unwelcome” way during the meeting. “It was ... physical contact that violated her personal space,” Sampson said.

Hehr said Tuesday’s news conference was the first he’s heard of any such allegation. “If there was any physical contact, it was completely accidental and I apologize.”

The survivors were on Parliament Hill on Tuesday to demand that the federal government honour a promise to provide lump-sum compensati­on of $250,000 and increased annual pensions. But their allegation­s against the minister stole the spotlight.

“It felt like a physical blow to my body,” Sampson said of the comments.

“We were shocked and stunned because really, he is the minister responsibl­e for persons with disabiliti­es. He’s supposed to be our champion ... Not only did he not step up as a champion, but he degraded us, he insulted us.”

In his statement, Hehr said his heart goes out to survivors, that he listened to their stories, and that the government is taking concerns seriously. Sampson said his apology will continue

UNTIL WE GET THE FULL SUPPORT PROMISE FULFILLED, THE APOLOGY IS MEANINGLES­S.

to ring hollow until the government delivers on its promise.

“Until we get the full support promise fulfilled, the apology is meaningles­s.”

Patients have received lump sum payments of $125,000 each, she said, adding many are struggling to make ends meet due to the extent of their disabiliti­es.

Lee Ann Dalling, also a thalidomid­e survivor, said she feels betrayed by MPs who supported a unanimous motion in the House of Commons in 2014 calling for “full support” to Canadian thalidomid­e victims, who were born with wide-ranging physical disabiliti­es as a result of their mothers having been prescribed the drug during pregnancy.

“I thought, ‘Finally, our federal government is trying to make amends for the 50-plus years of pain, ridicule, rejection and suffering,’” she said. “A life that was versus a life that could have been and should have been.”

Survivors believed they were being shown compassion, respect, dignity and accountabi­lity that had been sorely lacking from Ottawa, Dalling said.

“Once again, our dignity was assaulted,” she said.

“We all endure humiliatio­n on a daily basis due to our physical appearance. There’s not a day that goes by that I do not receive a hurtful comment related to thalidomid­e. The federal government reneging on its promise of full support compounds these daily indignitie­s.”

 ?? ADRIAN WYLD / THE CANADIAN PRESS ?? Disabiliti­es Minister Kent Hehr faced criticism Tuesday from a group of people born with birth defects over remarks that Hehr said were “misconstru­ed.”
ADRIAN WYLD / THE CANADIAN PRESS Disabiliti­es Minister Kent Hehr faced criticism Tuesday from a group of people born with birth defects over remarks that Hehr said were “misconstru­ed.”

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