Strong show of support
Alexandre and Leo Lapierre, of the Long Sault area, “typical boys” dealing with a mystery illness, are the most recent recipients of Small Moments of Joy, an initiative of Rachel’s Kids.
Alexandre, 5, and Leo, 3, are brothers who suffer from a condition called Primary Immunodeficiency (PI).
There are over 300 genetic defects and disorders of the immune system that can be recognized as a primary immunodeficiency disorder.
The boys’ case is still a mystery as doctors are still trying to determine the type and cause of their disorder.
“When we chose to help the Lapierre family by granting them a wish of this magnitude, we knew this family could certainly benefit from some quality time together to recognize the sacrifices they have had to make for their sweet boys,” says Dr. Rachel Navaneelan, Founder and Chair of Rachel’s Kids. “But we were not expecting the outpouring of support and gratitude so many people from the community expressed on our social media platforms thanking us for granting this wish. It’s really humbling to witness how important this wish is not only to the family, but to all who are aware of their very difficult situation.”
“Despite their illness they are typical boys enjoying typical boy things. They love the outdoors, the beach, to play with cars and trucks. They have a great sense of humour and are living a very full and fun life,” writes their father, Rob Lapierre
Rachel's Kids will be sending the boys and their parents on a seven-day Eastern Caribbean cruise this fall.
“Our Small Moments of Joy program could not be possible without the support of our amazing community,” says Rachel’s Kids.
Contact Rachel’s Kids at 613-9333946 or visit www.rachelskids.com
MOMENTS OF JOY: Alexandre and Leo Lapierre will be off on a cruise thanks to the Small Moments of Joy initiative.