Strong show of sup­port

The Glengarry News - - News -

Alexan­dre and Leo Lapierre, of the Long Sault area, “typ­i­cal boys” deal­ing with a mys­tery ill­ness, are the most re­cent re­cip­i­ents of Small Mo­ments of Joy, an ini­tia­tive of Rachel’s Kids.

Alexan­dre, 5, and Leo, 3, are brothers who suf­fer from a con­di­tion called Pri­mary Im­mun­od­e­fi­ciency (PI).

There are over 300 ge­netic de­fects and dis­or­ders of the im­mune sys­tem that can be rec­og­nized as a pri­mary im­mun­od­e­fi­ciency dis­or­der.

The boys’ case is still a mys­tery as doc­tors are still try­ing to de­ter­mine the type and cause of their dis­or­der.

“When we chose to help the Lapierre fam­ily by grant­ing them a wish of this mag­ni­tude, we knew this fam­ily could cer­tainly ben­e­fit from some qual­ity time to­gether to rec­og­nize the sac­ri­fices they have had to make for their sweet boys,” says Dr. Rachel Na­va­nee­lan, Founder and Chair of Rachel’s Kids. “But we were not ex­pect­ing the out­pour­ing of sup­port and grat­i­tude so many peo­ple from the com­mu­nity ex­pressed on our so­cial me­dia plat­forms thank­ing us for grant­ing this wish. It’s re­ally hum­bling to wit­ness how im­por­tant this wish is not only to the fam­ily, but to all who are aware of their very dif­fi­cult sit­u­a­tion.”

“De­spite their ill­ness they are typ­i­cal boys en­joy­ing typ­i­cal boy things. They love the out­doors, the beach, to play with cars and trucks. They have a great sense of hu­mour and are liv­ing a very full and fun life,” writes their fa­ther, Rob Lapierre

Rachel's Kids will be send­ing the boys and their par­ents on a seven-day Eastern Caribbean cruise this fall.

“Our Small Mo­ments of Joy pro­gram could not be pos­si­ble with­out the sup­port of our amaz­ing com­mu­nity,” says Rachel’s Kids.

Con­tact Rachel’s Kids at 613-9333946 or visit www.rachel­


MO­MENTS OF JOY: Alexan­dre and Leo Lapierre will be off on a cruise thanks to the Small Mo­ments of Joy ini­tia­tive.

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