ALS Sup­port Group meet­ing set for Septem­ber 25

The Southwest Booster - - FRONT PAGE -

In­di­vid­u­als in­ter­ested in join­ing an ALS Sup­port Group are in­vited to at­tend a meet­ing on Septem­ber 25 at The Mead­ows.

Meet­ings are aimed at in­di­vid­u­als with ALS, fam­ily, friends and care­givers.

Corinne Brown, who is one of the two in­di­vid­u­als co­or­di­nat­ing the ini­tial meet­ing, notes that sup­port group meet­ings are aimed at in­di­vid­u­als across the en­tire South­west.

She noted that when her mom was di­ag­nosed with ALS a few years ago, and when she needed sup­port, there were only sup­port groups in Regina, Saska­toon and now Lloy­d­min­ster.

“From my own ex­pe­ri­ence, there was no­body for me to talk to. And that’s what I was look­ing for,” she said. “The op­por­tu­nity should be there for those that wish to ac­cess sup­port.”

“We feel there’s a need in this area.” Amy­otrophic Lat­eral Sclero­sis (ALS), which is also known as Lou Gehrig’s dis­ease, is a pro­gres­sive dis­ease which grad­u­ally par­a­lyzes peo­ple when mo­tor neu­rons in the body no longer com­mu­ni­cate with the brain. This causes an in­di­vid­ual’s mus­cles to break down, in­hibit­ing them from walk­ing, talk­ing, eat­ing, swal­low­ing, and even­tu­ally breath­ing.

“Each case is dif­fer­ent. There isn’t a def­i­nite pat­tern to this dis­ease other than the end re­sult.”

De­pend­ing on the turnout at the ini­tial start-up meet­ing, they are hop­ing to then have a monthly meet­ing, with a time and day of the week to be de­ter­mined by the par­tic­i­pants.

“We’re open­ing this up to peo­ple that are di­ag­nosed with ALS, their fam­i­lies and care­givers. Along with peo­ple who have ex­pe­ri­enced ALS in their lives.”

Direc­tor of ALS So­ci­ety of Saskatchewan, Mike Richter, will be in at­ten­dance for the first few meet­ings in or­der to pro­vide sup­port.

The Septem­ber 25 meet­ing will be hosted in the Com­mu­nity Kitchen at The Mead­ows. Or­ga­niz­ers are ex­tend­ing an open in­vi­ta­tion, with no obli­ga­tion to at­tend ad­di­tional meet­ings.

More in­for­ma­tion on the ALS So­ci­ety of Saskatchewan is avail­able by vis­it­ing or by call­ing 306-949-4100.


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