Toronto Star

How Ottawa can help families with disabiliti­es

- KATHLEEN O’GRADY Kathleen O’Grady is managing editor of EvidenceNe­twork.ca, a research associate at the Simone de Beauvoir Institute, Concordia University in Montreal, and the mother of two sons, one with autism.

Many of us in the disability community were pleasantly surprised when the Liberal party promised to create a National Disabiliti­es Act that would safeguard disability rights, reduce systemic barriers and establish a foundation of opportunit­y for those affected by disability. Canada is an outlier among developed nations for not having one — the U.S. has had theirs for 25 years — so it could not arrive soon enough.

But the federal Conservati­ve government did make some positive contributi­ons of their own for the disability community during their decade in power — most notably, the Registered Disability Savings Plan (RDSP).

The RDSP was the brainchild of the non-profit organizati­on PLAN and was championed by the late finance minister Jim Flaherty, who made it a reality in the 2007 budget. Flaherty had first-hand experience with disability; one of his sons contracted encephalit­is as an infant with lasting health consequenc­es.

The RDSP is Flaherty’s legacy to Canadians with disability and it remains an important and valuable program — at least in theory.

According to a 2014 study, only about 15 per cent of eligible Canadians take part in the program, meaning almost half a million eligible people are losing out. So what is it and what needs to be done to make it work better for Canadians?

The RDSP is a savings plan that helps parents and caretakers of those with a disability save for their loved one’s long-term financial future with some financial contributi­ons coming directly from the government — free money, in other words.

There are two components to the RDSP in addition to personal contributi­ons: a federal grant and a federal bond. The grant is based on family income and how much a family contribute­s privately to the RDSP. It can equal as much as $3,500 in government contributi­ons each year. The bond is based solely on family income (those making less than $43,953) and can be as much as $1,000 in contributi­ons from the government per year.

Over the lifetime of an RDSP, an individual can receive as much as $70,000 from the federal grant, and if eligible, as much as $20,000 from the federal bond.

So why are so few using the RDSP? In 2014, a Senate committee undertook a study to answer this very question. It’s time our new federal government dusted off the report and put some of the recommenda­tions into action.

Here are three quick ways the government can improve the RDSP:

1. Establish an RDSP automatica­lly once an individual is eligible for Revenue Canada’s Disability Tax Credit.

When I initiated my son’s RDSP, I was required to provide his Disability Tax Credit status, social insurance number, proof of age and residency in Canada. It’s a lot of intimidati­ng bureaucrat­ic paperwork that could put off families who may have time, language or educationa­l barriers.

2. Raise awareness and understand­ing of the RDSP program.

I regularly encounter families in the disability community who have never heard of the RDSP program or don’t know how to initiate it. Others have told me they don’t have the money to start one — unaware they’d be eligible for free government bonds just for opening the account without requiring a penny of savings from them.

The Senate report recommends the federal government should partner directly with advocacy groups to help spread the word. It’s often the front-line nonprofit groups who are directly engaged with disability families and know best how to reach them. Another promising model is to have health practition­ers work directly with their patients.

3. Allow other family members and friends to contribute to an RDSP.

This recommenda­tion isn’t in the Senate report, but it’s one that comes from my own experience and from others I know in the disability community. If you have a disabled child, “extra money” is not always easy to tuck away. But birthdays and other special events are an opportunit­y for loved ones of the child to contribute meaningful­ly to their future.

Financial institutio­ns should work with the federal government to find an easy way for those who are not plan holders to contribute to an individual RDSP.

The RDSP is an excellent program and needed as much today as when it was created. Ottawa just needs to give it wings to make it fly.

The Registered Disability Savings Plan helps families save for their loved one, but only about 15 per cent of eligible Canadians take part in the program

 ?? MATHEW MCCARTHY/WATERLOO REGION RECORD ?? Establishi­ng a Registered Disability Savings Plan automatica­lly once an individual is eligible for Revenue Canada’s Disability Tax Credit would help make the program work better for Canadians, writes Kathleen O’Grady.
MATHEW MCCARTHY/WATERLOO REGION RECORD Establishi­ng a Registered Disability Savings Plan automatica­lly once an individual is eligible for Revenue Canada’s Disability Tax Credit would help make the program work better for Canadians, writes Kathleen O’Grady.
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