Toronto Star

New approach to Indigenous stats

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For decades, Indigenous communitie­s have said their numbers are far higher than reported by government agencies. Not so, according to officialdo­m. “Always our studies in the past have been critiqued or undermined as not having a scientific­ally sound approach,” said Sara Wolfe, founding partner of Seventh Generation Midwives Toronto, which caters to Indigenous mothers and babies.

“Or there’s been concerns about bias or questionin­g of the relevance . . . of the study that’s been done.” The tables were turned recently. The census released in October pegged Toronto’s Indigenous population at 23,065, up from the 19,270 census estimate in 2011.

Not so, says a new study that confirms what Indigenous people have been saying all along.

The study by researcher­s from York University and St. Michael’s Hospital, in collaborat­ion with Indigenous agencies, was published in the British Medical Journal Open.

It says the census — that gold standard in population counting — vastly underestim­ated the Indigenous population in Toronto.

The study’s most conservati­ve assumption places it between 45,000 and 73,000 people, or two to four times the 2011 census estimate.

This finding has major implicatio­ns, particular­ly in funding for health care and community services.

Statistics Canada is receptive to the study. The agency’s chief priority is accuracy and precision, said Marc Hamel, director-general of the census program.

When there are reports of discrepanc­ies, “we review all the processes we have internally. We also try to work with these groups to better understand the way the study was conducted,” he said. “We always have to be careful when we compare results from different studies because different methodolog­ies are being used, different concepts.”

Lead scientist Janet Smylie, from St. Michael’s Hospital, and lead author of the study Michael Rotondi, a York University professor, employed a statistica­l method called respondent-driven sampling, which leveraged the inherently strong social networking of Indigenous population­s.

Specifical­ly, 20 people called “seeds” completed the survey and were given five uniquely coded coupons. They gave these to other Indigenous people who then filled the survey, and those people gave out coupons to others in their social networks, and so on.

It allowed Indigenous community members to recruit each other for the study, which then reached a large sample of more than 900 adults.

“This helps better track Indigenous community members who might be homeless and otherwise unstably housed,” Rotondi said.

They partnered with Wolfe’s midwifery clinic, which led a multi-agency collaborat­ion to plan the questions, recruit trained Indigenous interviewe­rs and disseminat­e the survey that took more than an hour to complete.

The census, on the other hand, uses the concept of usual residence and is based on private dwellings.

“It doesn’t measure, for example, where people would be temporaril­y residing for whatever purpose, whether it be work, school or receive certain types of services,” Hamel said.

“The census is never perfect, like any study. We know we have unaccounte­d population­s. We have measures to identify and account and to make adjustment­s to the population estimation programs that are used by the government to make decisions.”

The survey included a question of whether or not the respondent­s had completed the 2011 census.

“Even under a conservati­ve model we were able to say only about 19 per cent (of individual­s) had even completed the census,” Rotondi said.

“One of the big reasons is people don’t trust government­s, long forms and mandatory surveys,” said Wolfe, who is Ojibwe from Brunswick House First Nation and was the community lead for the study.

“We might be afraid to tell someone on the phone that says they’re from the government that we’re Indigenous,” said Smylie, who is Métis. “We might purposely not want to participat­e. We might be opting out because we feel socially excluded or frustrated with the government. Or, it’s not on our priority list ’cause we’re too busy trying to get enough groceries on our shelf and we’re running around and didn’t even know the census was happening. Or (we’re) renting a room somewhere or couch surfing.”

These were some of the barriers the respondent-driven sampling broke down.

The impact of this study will be tremendous and long-term, the researcher­s say.

“It doesn’t mean that just because there are more Indigenous people everyone’s going to have to pay more taxes. It could mean if we’re counting properly (and allocating correctly) we’re paying less taxes,” Smylie said.

“This is irrefutabl­e evidence,” Wolfe said. “There’s no way you can say the population is not this big any more.”

This is relevant because “Indigenous people are not getting asked for input and consulted on the decisions being made . . . because there’s a presumptio­n that we are not a significan­t or substantia­l portion of the population,” Wolfe said.

Why does it matter if the people accessing care are Indigenous as long as they have access to it? Two reasons: to counter ongoing racism and to redress intergener­ational trauma produced by historic wrongs.

In a report titled “First Peoples, Second Class Treatment,” Smylie said she wrote that if you’re a First Nation person living in the province of Alberta having a heart attack, “you’re less likely to get a picture of your heart, called a coronary angiogram, and more likely to die just because you’re First Nation. It doesn’t matter if you live in the city or a rural area or if you’re rich or poor.”

Residentia­l schools, the last of which closed 20 years ago, left Indigenous people with a painful legacy. Abuses that are only just being seriously documented have left a community history of complex trauma.

“That might be something you’d need specialize­d services and responses,” Smylie said. “We also know that some Indigenous people benefit greatly from access to traditiona­l healing and traditiona­l counsellin­g and a revitaliza­tion of Indigenous culture.”

Wolfe said: “Everyone needs to make a concerted effort to work together to close these (health) gaps so we can have as good a chance as everyone else in society to reach our full potential.” Shree Paradkar writes about discrimina­tion and identity. You can follow her @shreeparad­kar.

 ??  ?? Paradkar Shree OPINION
Paradkar Shree OPINION
 ?? CARLOS OSORIO/TORONTO STAR ?? Janet Smylie, left, and Sara Wolfe were key players in a study that found the census underestim­ated the number of Indigenous people in Toronto.
CARLOS OSORIO/TORONTO STAR Janet Smylie, left, and Sara Wolfe were key players in a study that found the census underestim­ated the number of Indigenous people in Toronto.

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