Toronto Star

Liberals ask for court extension for assisted dying bill

Experts fear bill’s failure could lead to two-tiered system in Canada

- JACQUES GALLANT LEGAL AFFAIRS REPORTER

Ernest Frederikse­n says he can’t remember a time he didn’t feel intolerabl­e pain.

“I spend eight to10 hours a day sitting in the same chair, because I’m in too much pain to get up and do anything. I take over 40 pills a day for my various conditions and none of them make it even close to possible to hold down a normal job,” said the 28-year-old Alberta man, who has been living for the past decade with fibromyalg­ia, a condition that comes with chronic widespread pain.

Frederikse­n wants a medically assisted death, but is barred under Canada’s current law governing the procedure because his natural death is not considered reasonably foreseeabl­e.

The Liberal government’s revamped medical assistance in dying (MAiD) law removes that criterion — in response to a Quebec Superior Court decision that found it unconstitu­tional — but the bill is being held up in Parliament, just days before a Dec. 18 deadline set by the Quebec court.

Bill C-7 finally passed the House of Commons on Thursday in a 212-107 vote, but faces an uphill battle in the Senate, where senators have been deeply divided on the contentiou­s piece of legislatio­n.

The government announced Friday it was asking the court for a third extension to the deadline, which would push it from Dec. 18 to Feb. 26. Justice Minister David Lametti has acknowledg­ed there’s no guarantee the request will be granted.

If the bill does not pass by Dec. 18 and if the deadline isn’t extended, Canadians outside Quebec like Frederikse­n who suffer intolerabl­y from incurable conditions and want a medically assisted death, will continue to be barred from accessing it because their natural deaths are not reasonably foreseeabl­e.

Experts say the failure to pass the bill in time will create a twotiered MAiD system in this country, with the regime in Quebec being more expansive and allowing individual­s whose deaths are not reasonably foreseeabl­e to access MAiD, but without some of the legislated safeguards proposed in C-7.

“It would just be very unfair to Canadians across the board,” Frederikse­n said. “Health-care decisions aren’t something that

should be dependent on where you live.”

The Liberals and Conservati­ves have pointed fingers at each other over the delay in getting the bill passed on time.

Conservati­ves filibuster­ed the bill in the House, and argued that the government is trying to rush the bill through amid outcry from disability advocates who have expressed deep concerns with it.

In an interview with the Star on Thursday, Lametti said the bill is about “reducing suffering, and frankly the Conservati­ves’ delay tactics resulted in us being in a worse position to get this through.”

If the bill doesn’t pass in time and if the deadline isn’t extended, “It creates a number of different uncertaint­ies and quite frankly, increases people’s suffering,” Lametti said.

“That’s the point that gets forgotten. There are real people here.”

And so what could be different after Dec. 18 if the bill doesn’t pass, and assuming there is no deadline extension?

The biggest difference is that individual­s in Quebec whose deaths are not reasonably foreseeabl­e, but who meet the other criteria in the current law — such as having an incurable condition and intolerabl­e suffering — would be eligible to access MAiD.

This is as a result of a 2019 Quebec court decision in the case of Jean Truchon, which found the government’s eligibilit­y criteria that a person’s natural death be reasonably foreseeabl­e was unconstitu­tional. (A handful of Quebecers whose deaths were not reasonably foreseeabl­e have succeeded in having a court grant them an exemption for an assisted death since that ruling.)

But what the failure to pass the bill in time would also mean is that the new safeguards that the federal government has included in its revamped bill for people whose deaths are not reasonably foreseeabl­e would not be in effect in Quebec.

These include a rule that eligi

bility assessment­s must take a minimum of 90 days. Safeguards in the current law would remain, including the need to be assessed by two different health profession­als.

Not passing the bill would also open the door for individual­s in Quebec with mental illness as their sole underlying condition potentiall­y becoming eligible for MAiD (though whether it was approved would depend on each individual’s assessment). The government’s new bill had put a ban on that in order to study it further.

Jocelyn Downie, a professor at Dalhousie University who specialize­s in health law, said the Quebec government or profession­al regulatory bodies in the province could still bring in their own rules for assessing individual­s whose deaths are not reasonably foreseeabl­e.

As for the rest of the country, the failure to pass C-7 by Dec.18 means only those whose deaths are reasonably foreseeabl­e will be able to access MAiD, and people like Frederikse­n will continue to be excluded, because the Quebec court decision only applies in that province.

“Members of the public who believe the Quebec court decision was just are going to find that we have a different standard of health care in this country,” said Dr. Stefanie Green, a MAiD provider and president of the Canadian Associatio­n of MAiD Assessors and Providers.

“I don’t think that should exist and I don’t think the Canadian public will accept that.”

The bill is now in the Senate, where the upper chamber’s legal and constituti­onal affairs committee heard from more than 80 witnesses in a prestudy of the bill’s subject matter. It concluded Thursday that the bill remains “contentiou­s,” releasing a report detailing witnesses’ various concerns with it. Conservati­ve Sen. Denise Batters, vice-chair of the committee, told the Star she’s not confident the bill will pass by the 18th, and that a week is not enough time for debate.

“C-7 is not the kind of bill you rush, it’s as important as it gets,” she said. “There’s no way the Senate should be forced into rushing it or rubber-stamping it.”

The bill’s sponsor in the upper chamber, independen­t Sen. Chantal Petitclerc, said she still has hope that her colleagues can get through it in a week, though she’s become increasing­ly concerned.

“To me it’s very disturbing that if it doesn’t pass, then because of the Truchon decision, there will be two classes of Canadians when it comes to medical assistance in dying,” she said.

Frederikse­n says he’s been following the parliament­ary debate with a mix of “exhaustion and disgust.” He quoted Sue Rodriguez, who had fought to change the laws on assisted death in the 1990s:

“If I cannot consent to my own death, whose body is this? Who owns my life?”

Added Frederikse­n, “And that’s still the case today.”

 ?? COURTESY OF ERNEST FREDERIKSE­N ?? Ernest Frederikse­n, 28, has fibromyalg­ia and is in constant pain. He wants a medically assisted death, but is barred by law.
COURTESY OF ERNEST FREDERIKSE­N Ernest Frederikse­n, 28, has fibromyalg­ia and is in constant pain. He wants a medically assisted death, but is barred by law.

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