Vietnam signs deal for treating rare diseases
The Medical Services Administration, under the Ministry of Health
(MoH), Government of Vietnam and
Shire Singapore Ltd have signed a Memorandum of Understanding (MoU) in order to improve the diagnosis, treatment and management of rare diseases in Vietnam until 2023. The agreement is also expected to help support professional medical education in the country and develop a management programme for rare diseases. During the first stage,
MoH and Shire will work together to develop a national guideline to improve the quality of diagnostics, treatment and management of Haemophilia and Pelvic Inflammatory Disease (PID) as well as to support policy development on rare diseases in Vietnam. According to the World Health Organisation
(WHO), there are approximately 100 rare diseases reported in Vietnam.
It is estimated that almost one in 15 persons, or approximately six million people in the country, suffer from a rare disease. Vietnam has more than 6,000 haemophilia patients, but only 2,400 have been detected their disease situation, while PID remains common and adversely affects the prognosis of these patients.