India Review & Analysis

Heroes in every way: Inspiring tales of child-cancer survivors

- By Siddhi Jain

Diagnosed with cancer as a 6-year-old, Nidhi Baipotu, now 9, is a proud medallist in multiple sports. Lauded by Prime Minister Narendra Modi during his recent ‘Mann Ki Baat’ (‘words from the heart”) radio address, she is one of 10 Indian child cancer survivors who went to the 2019 World Children’s Winners Games in July, and whose lives are an inspiring testimony to the spirit of resilience in human beings and their determinat­ion to beat the odds.

The children, many of them underprivi­leged, come from various corners of the country. What threads them together are their long and tough personal battles against cancer.

Nidhi’s mother, Jyoti Baipotu, recalls the night when her daughter was tested positive for Sarcoma cancer in her leg. “It seemed endless. I wanted to end my life rather than seeing my daughter in excruciati­ng pain, but we stayed strong. Four months later, she went into surgery,” Mumbai-based Jyoti said.

From that day to July 2019, Nidhi has beaten cancer and toured Russia’s capital Moscow, as part of the Winners’ Games, an annual internatio­nal competitio­n of survivors of childhood cancer. She bagged three gold medals in swimming, chess and running, and a bronze in rifle shooting.

Much ink has been spilled on a healthy post-cancer life yet the term ‘cancer’ itself evokes dread like no other medical condition.

“Their victory is impactful, because however much we say that ‘you are a survivor’ and ‘you are normal’, these small things prove that point. The label of cancer should be forgotten at some stage and they should just get on with life.

It inspires other survivors to meet their full potential. They can compete in education, in sports, and at the workplace,” Dr Purna Arun Kurkure, a paediatric oncologist, said.

Dr Kurkure, a child cancer specialist who was a key part of Tata Memorial Hospital’s medical efforts to treat children with cancer, also emphasises on follow-ups and the rehabilita­tion of these younger patients. Notably, the hospital has treated many underprivi­leged cancer patients for free, including these 10, and has been sending young survivors to the Winners’ Games since 2014. It also runs a cancer support group, where their treated patients become ambassador­s of hope and empathy.

While winning medals in sports is one aspect of their rehabilita­tion, they are winners for having already won over cancer. The stories of these young children, and their parents, are motivating.

Another child from the group, Atharva Deshmukh, 11, was detected with a brain tumour in 2014. Coming from a humble background in Maharashtr­a’s Satara district, his family moved to the state capital to get him treated at Tata Memorial.

“Atharva and I travelled across Mumbai in the local train for his chemothera­py sessions for months. He had lost his confidence, became quiet and aloof,” his mother Vaishali said, quickly adding that “kids can and do become okay”.

With medals in football and chess, the young survivor has returned to life largely as usual. Another boost that followed their adventures in Russia was Prime Minister Modi’s monthly Mann Ki Baat address to the nation, where he talked about them by name and held up their examples as profiles in courage.

“Friends, certain turns in life make our hearts swell with joy and zest, especially our children’s achievemen­ts, their feats fill us up with energy. And that is why today, I feel like mentioning a few children. They are Nidhi Baipotu, Monish Joshi, Devanshi Rawat, Tanush Jain, Harsh Devdharkar, Anant Tiwari, Preeti Nag, Atharva Deshmukh, Aronyatesh Ganguli and Hrithik Alaamandaa,” Modi said.

“..Each of these ten children, not only fought against the dreaded disease of cancer in their battle of life, but also brought glory and laurels to the country,” he added.

The Tata Hospital is continuing to support cancer patients through its ImPaCT (Improving Paediatric Cancer Care and Treatment) Foundation, and partnershi­p with Indian Cancer Society.

While winning medals in sports is one aspect of their rehabilita­tion, they are winners for having already won over cancer. The stories of these young children, and their parents, are motivating. Another boost that followed their adventures in Russia was Prime Minister Modi’s monthly Mann Ki Baat address to the nation, where he talked about them by name and held up their examples as profiles in courage

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