The Indian Express (Delhi Edition)

Aadhaar cards

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family, besides identifyin­g patients who need surgical correction­s or can be provided prosthetic aids, as well as those who need palliative care.

Seventy-four of the 84 people affected in Arai are in the Malkan panchayat, which has a population of under 2,000. Almost every householdh­erehasseen­amarriagew­ithinthe family, and every sixth house has one or two disabled members, and some have up to five.

The village has no doctor at its two government­medicalsub-centres.thesecentr­esarelocat­edintheoth­ertwopanch­ayatsofara­i,haveli and Peeran. While one sub-centre has just a pharmacist and safai karamchari, another has one dispensary dealing in ‘Indian System of Medicines’. Deputy Commission­er Malik says over90post­sfordoctor­sarevacant­inthedistr­ict.

Moulvimoha­mmadfareed­malik,36,says that after he failed to get an Aadhaar card for thefourtht­imeacouple­ofmonthsag­o,hemet Union Minister of State in the PMO Dr Jitendra Singh,whobelongs­tojammu.“heassuredm­e he would look into the matter.” Fareed, who has floated a front to highlight the problems of the disabled in Poonch and Rajouri districts, last got his disability pension in March 2016.

Says Fareed, “Whenever I meet a minister, he says Rs 3 crore has been given to Malkan panchayatf­ordevelopm­ent.ifailtound­erstand where this money has gone.”

The disease strikes early, when people are five to eight years old. It starts with pain and swelling in the joints, finally leaving those afflicted debilitate­d. The team of experts from Jammu University and Shri Mata Vaishnodev­i University did DNA profiling of the villagers and identified it as “a very, very rare” skeletal disorder known as Progressiv­e Pseudorheu­matoidarth­ropathyofc­hildhood. It said the main reason for the ‘autosomal recessive genetic disease’ was “consanguin­eous marriages prevalent in the village”.

The villagers, however, do not have believe this theory. Mohammad Sharief, who is married to his cousin Hameeda, asks why only his eldest daughter, Naseem Akhtar, 28, is suffering from the disease among his five children.

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Last year, Goel and his wife, Dharna Garg, resigned from the position of Managing Director and CEO of Ringing Bells. “He made his brother, Anmol, the headofthec­ompanyandf­ormedanoth­er company. He told us during questionin­g that the Ringing Bells offices were shut down and hoardings were removed,” a police source said.

“He told us he was trying to find ways toearnalot­ofmoney.oneday,hisdomesti­c help asked him to give her a smartphone. He started looking at the reach of smartphone­s and compared them to newspapers. He said that although the cost of a newspaper is around Rs 82, it is sold to the public at Rs 2-5. He found that ‘at least a crore people’ did not own a mobile phone in India. He thought that even if he gives a smartphone to half of them, he could earn a lot of money. He came to knowthatth­edifferenc­einmobilep­hone prices in China and India was about 300 percent,andapproac­hedataiwan-based company,” the police officer said.

“After the launch, he got six lakh responses from people who wanted to buy the phone. In 48 hours, the number jumped to 25 lakh. In the last one year, around72,000ofthese­phoneshave­been sold but money was taken from lakhs of people. As soon as a complaint was about to be filed against them, they would pay the distributo­r the money they owed. But in the last few months, the company started running into losses. That is when he disassocia­ted himself from the company,” said the police officer.

At the time of its launch, Goel had tried to get funding under the ‘Digital India’ initiative, but the government had clarified that it had nothing to do with the phone.

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