‘Hallucinations, tremors and
“The worst part of dementia with Lewy bodies (DLB) is the hallucinations and the nightmares,” says 54-year-old Kevin Quaid from Cork.
In the year-and-a-half since he was diagnosed with the condition, he has written a book about his experience, called Lewy Body Dementia, Survival and Me .He wrote it because not enough people know what it is, or know that dementia doesn’t always mean memory loss.
Most people have heard of dementia, but research suggests many don’t fully understand what it is. Dementia is an umbrella term that describes a set of symptoms that occur when brain cells stop working properly. Dementia is caused by different diseases, the most common of which is Alzheimer’s.
Dementia with Lewy bodies (DLB) is the third most common form of dementia, but despite this, many people do not know what it is. This is complicated further by the fact that memory loss isn’t the main symptom of the disease.
Symptoms of DLB include confusion, movement problems, tremors, stiffness in arms and legs, and shaking. People with
Kevin Quaid: “People are very ignorant about dementia. There’s a lack of education and people just don’t understand it.”