‘A START MADE IN LYME DISEASE FIGHT’

The Sligo Champion - - NEWS -

DR. Jack Lam­bert Con­sul­tant Spe­cial­ist in In­fec­tious Disease at Dublin’s Mater Hos­pi­tal was joined on Mon­day by Fianna Fail TDs Marc Mac Sharry & Ea­mon Scan­lon, Co- Chairs of the Cross Party Oireach­tas Ac­tion Group on Lyme to launch Ire­land’s first Lyme Disease Re­source in Dublin.

In a joint state­ment, Mac Sharry & Scan­lon speak­ing as Co- Chairs of the Lyme Disease Ac­tion Group which they founded in the Oireach­tas said: “This is a very wel­come de­vel­op­ment and we are de­lighted to be as­so­ci­ated with it.

“Dr. Lam­bert is to be com­mended in his proac­tive and com­pas­sion­ate ap­proach to Lyme in Ire­land.

Much of the med­i­cal es­tab­lish­ment have ig­nored what has be­come one of our na­tion’s si­lent crises and taken refuge in out­dated guide­lines for di­ag­no­sis and treat­ment.

The LRC launch un­der the stew­ard­ship of Dr Lam­bert is a water­shed mo­ment for Lyme disease in Ire­land in terms of the pro­vi­sion of Ed­u­ca­tion for GPs,

Sup­port for Pa­tients and the cru­cial lobby for ad­e­quate recog­ni­tion of the prob­lem, bet­ter sci­ence and re­search, clin­i­cal di­ag­no­sis and ap­pro­pri­ate care path­ways.

A start has been made but with the am­biva­lence of the es­tab­lish­ment there is a long hard bat­tles ahead “

Also speak­ing at the launch was Jenna Luche-Thayer, a for­mer Se­nior Ad­viser to the US Govern­ment and the United Na­tions.

Ms. Luche-Thayer, pi­o­neer of Lyme Disease Recog­ni­tion and a for­mer pa­tient her­self founded an All-Vol­un­tary In­ter­na­tional Com­mit­tee which ex­e­cuted a com­pre­hen­sive ap­proach which helped to suc­cess­fully es­tab­lish new codes for life-threat­en­ing com­pli­ca­tions from Lyme. The re­vised codes now in­clude con­gen­i­tal lyme bor­re­lio­sis.

This is the first time in over 25 years these se­ri­ous com­pli­ca­tions have been of­fi­cially recog­nised by the World Health Or­gan­i­sa­tion.

Mac Sharry said “While as a group within the Oireach­tas we will con­tinue to fight for the progress re­quired, this will be a dif­fi­cult task.

“In the mean­time, the na­ture of the LRC is ‘Opt in’ that is to say non manda­tory. For this rea­son we should all en­cour­age our GPs to en­gage with the LRC and Dr. Lam­bert. If we can suc­ceed in do­ing this it would rep­re­sent a small but very sig­nif­i­cant step in the right di­rec­tion in terms of ed­u­ca­tion in di­ag­no­sis and treat­ment.”

Fol­low­ing the launch Deputy Ea­mon Scan­lon said, in over 25 years in Pub­lic Life I have never wit­nessed such a rise in the preva­lence of Lyme Disease in Ire­land, it is in­cum­bent upon us all to do all we can to as­sist Dr Lam­bert and the now count­less Pa­tients and Fam­i­lies na­tion­wide af­flicted by this de­bil­i­tat­ing disease

Miriam Mor­ris­sey Sligo Lyme Disease Ad­vo­cate, Ea­mon Scan­lon TD, Dr. Jack Lam­bert Con­sul­tant Spe­cial­ist In­fec­tious Dis­eases Mater Hos­pi­tal, Jenna Luche-Thayer, Marc Mac Sharry TD & Fiona Quil­ter Sligo Lyme Disease Ad­vo­cate.

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