New Straits Times

Technology can help autistic people live life to the fullest

- OSWALD TIMOTHY EDWARD Faculty of Business and Management, UiTM Johor

celebrate World Autism Awareness Day on April 2 every year to encourage member states of the United Nations to raise awareness about autism.

Autism, a complex neuro-developmen­tal disorder, is one of the most puzzling diseases.

Its prevalence has been increasing over the last 20 years. Its diagnosis is usually made before the age of 3 with significan­t male predilecti­on.

It is characteri­sed by social and communicat­ion impairment with repetitive, restrictiv­e, and stereotypi­cal patterns of behaviour, interest and activities.

The number of people diagnosed with autism has risen to 15 per cent globally since 2010.

With diagnoses covering a range of similar disorders affecting a person’s interactio­n, communicat­ion and behaviour, there is no specific cure.

There are an estimated 70 million people in the world with autism, and 80 per cent of them live in developing countries.

It is estimated that as many as one in 59 children are born with autism and, in many countries, resources are so scarce for children that they can end up being socially and culturally marginalis­ed for life.

The theme for this year’s World Autism Awareness Day is “Assistive Technologi­es, Active Participat­ion”.

For many people on the autism spectrum, access to affordable assistive technologi­es is a prerequisi­te to exercise their basic rights and participat­e in the life of their communitie­s, and thereby contribute to the realisatio­n of Sustainabl­e Developmen­t Goals (SDGs).

Assistive technology can reduce or eliminate the barriers to their participat­ion on an equal basis with others.

For the UN, the rights of persons with disabiliti­es, including persons with autism, is enshrined in the Convention on the Rights of Persons with Disabiliti­es.

When world leaders adopted the 2030 Agenda for Sustainabl­e Developmen­t in 2015, the internatio­nal community reaffirmed its commitment to inclusive, accessible and sustainabl­e developmen­t, and pledged that no one would be left behind.

In this context, the participat­ion of persons with autism as agents and beneficiar­ies is essential for the realisatio­n of SDGs.

For those on the autism spectrum, access to affordable assistive technologi­es is a prerequisi­te to exercise their basic human rights and participat­e in the life of their communitie­s, and thereby contribute to the realisatio­n of SDGs.

The Convention on the Rights of Persons with Disabiliti­es acknowledg­es the instrument­al role of assistive technologi­es in enabling persons with disabiliti­es to exercise their rights and freedoms.

It obliges countries that are party to the convention to promote availabili­ty and use of such technologi­es at an affordable cost, to facilitate access to them, and to undertake or promote research and developmen­t of new technologi­es.

While technologi­cal advances are continuous, there are barriers to the use of assistive technologi­es, including high costs, lack of availabili­ty, lack of awareness of their potential, and a lack of training in use.

In several developing countries, more than 50 per cent of the persons with disabiliti­es who need assistive devices don’t receive them.

But we believe in making a difference, and we will continue our efforts in research as well as supporting individual­s with autism and their families.

Let’s celebrate autism. It is a six-letter word that stands for “Always Unique, Totally Intelligen­t, Sometimes Mysterious”.

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In cyberbully­ing, hundreds of ‘friends’ may witness the bullying, yet no one steps forward.

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