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Bay of Plenty Times - - Indulge -

Rachel Axis

Pa­pamoa mum and so­cial work stu­dent Rachel Axis agrees there is lit­tle un­der­stand­ing about the pain of liv­ing with endo.

“This dis­ease is not a joke! It’s real and it’s f***ing painful. And f*** any­one who tell you oth­er­wise. It is not just pe­riod pain, it is like hav­ing a minia­ture hu­man in­side you tear­ing at your insides and rip­ping them apart, fol­lowed by be­ing kicked up the birth canal to top it off.”

She was even re­cently bul­lied on­line for post­ing about it, ac­cused of be­ing “a drama queen”.

“It has made me feel in­se­cure about it and reaf­firms that some peo­ple think it’s some sort of joke. Which just adds to the mis­un­der­stand­ing of en­dometrio­sis in so­ci­ety.”

She be­lieves many suf­fer­ers could po­ten­tially find re­lief in medic­i­nal mar­i­juana.

“It fright­ens me to speak out about this due to rep­u­ta­tion, but it hands down is the only pain re­lief that has en­abled me to get out of bed, in­ter­act with my fam­ily and carry on with my day.”

Al­though blessed to have one daugh­ter, she and part­ner singer Tiki Taane are try­ing for a child and this year she suf­fered a dev­as­tat­ing mis­car­riage.

There are other chal­leng­ing phys­i­cal as­pects of the dis­ease in­clud­ing cys­tic acne, a side ef­fect of hor­monal im­bal­ance which she says de­stroys her con­fi­dence to the point where she iso­lates her­self and avoids so­cial gath­er­ings.

Painful in­ter­course or bleed­ing dur­ing For liv­ing with en­dometrio­sis symp­toms be­ing so in­tense.

— Go paraben-free. Parabens are in most beauty and body prod­ucts such as sham­poo, makeup, soap and body­wash, mois­turis­ers . . . the list goes on.

— Use heat packs, get enough sleep and prac­tise self love.

— Reach out for sup­port, fol­low other blog­gers who suf­fer to know you are not alone, and if you feel that your doc­tor doesn’t “get it” then change doc­tors. — Drink lots of wa­ter.

— Speak out, be hon­est and ed­u­cate those around you.

in­ter­course can be trou­ble­some for suf­fer­ers, and stom­ach bloat­ing is an­other dis­com­fort.

“In­con­sis­tent weight gain and loss and the ‘endo belly’ which makes me feel like a beached whale.”

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