Papamoa mum and social work student Rachel Axis agrees there is little understanding about the pain of living with endo.
“This disease is not a joke! It’s real and it’s f***ing painful. And f*** anyone who tell you otherwise. It is not just period pain, it is like having a miniature human inside you tearing at your insides and ripping them apart, followed by being kicked up the birth canal to top it off.”
She was even recently bullied online for posting about it, accused of being “a drama queen”.
“It has made me feel insecure about it and reaffirms that some people think it’s some sort of joke. Which just adds to the misunderstanding of endometriosis in society.”
She believes many sufferers could potentially find relief in medicinal marijuana.
“It frightens me to speak out about this due to reputation, but it hands down is the only pain relief that has enabled me to get out of bed, interact with my family and carry on with my day.”
Although blessed to have one daughter, she and partner singer Tiki Taane are trying for a child and this year she suffered a devastating miscarriage.
There are other challenging physical aspects of the disease including cystic acne, a side effect of hormonal imbalance which she says destroys her confidence to the point where she isolates herself and avoids social gatherings.
Painful intercourse or bleeding during For living with endometriosis symptoms being so intense.
— Go paraben-free. Parabens are in most beauty and body products such as shampoo, makeup, soap and bodywash, moisturisers . . . the list goes on.
— Use heat packs, get enough sleep and practise self love.
— Reach out for support, follow other bloggers who suffer to know you are not alone, and if you feel that your doctor doesn’t “get it” then change doctors. — Drink lots of water.
— Speak out, be honest and educate those around you.
intercourse can be troublesome for sufferers, and stomach bloating is another discomfort.
“Inconsistent weight gain and loss and the ‘endo belly’ which makes me feel like a beached whale.”