Herald on Sunday

A CHARITABLE

CONNECTION

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New Zealand Fashion Week (NZFW) founder Dame Pieter Stewart sold the event in 2021 but she certainly hasn’t been taking it easy. Charitable work has been keeping her busy and last October she became Chair of the Board for Cystic Fibrosis NZ (CFNZ) after more than a year working with the organisati­on.

May is Cystic Fibrosis Awareness Month and Stewart hopes to ignite a wave of kindness across New Zealand. She and her team are determined to do their best to provide quality of life for people with CF and their families. After selling NZFW to Feroz Ali in 2021 she was approached by many different organisati­ons to become involved in a variety of ways. “In each case, I did my due diligence to see if I could help or make a difference,” says Stewart.

“The story of cystic fibrosis immediatel­y pulled me in — partly because of the cruelty of the genetic illness, as well as the opportunit­y to work with an impressive team of people. After a year on the board I was asked to become chair — so as an independen­t member, with no experience of CF, I am learning heaps daily.” NZFW worked with many charities over the years and prior to founding the popular event, Stewart mixed up her impressive 50-year-plus career in fashion and business by working with not-for-profit organisati­ons. She says standouts include years with the Child Cancer

Foundation and being on the board of the Independen­t Schools Council.

She credits her work with charities and boards for compliment­ing her business career.

She says through the amazing network across the organisati­on and production of NZFW, “it’s been great to be able to call on people for advice, direction and help, that I would never otherwise have come to know.”

Stewart says she and the CFNZ CEO Lisa Burns and their volunteers had one job to do — “change the minds of a few who held great power”. They campaigned to get Pharmac-funding for the life-saving drug Trikafta, which finally became available in New Zealand in April 2023.

“We delivered an undeniable groundswel­l of support from media and the public that compelled action from those in positions of influence to make a decision that would ultimately provide access to a treatment that would increase life expectancy and improve quality of life.”

Stewart and Burns were at Parliament last month for New Zealand’s first national medicines summit, co-hosted by Patient Voice Aotearoa and Medicines New Zealand.She urges people to go to the CFNZ website to learn about the innovative ways the organisati­on is working and how the public can help.

Another NZFW alumnae now working in the charity sector is Breast Cancer Cure CEO Sonja de Mari, who tells Spy she had a very colourful, varied career in the extremes of commerce and the performing arts, as well as travelling with her profession­al sailor husband around the world. But returning to New Zealand in 2010, fate happened.

“I landed back home and my fabulous friend Hayley Brooke was heading off for a year with her family to travel through Europe and gifted me the opportunit­y to produce her shows for NZFW.

“It was such a privilege to work for Dame Pieter for most of the next decade.”

Outside NZFW, de Mari became an indemand fashion show producer while giving her time free for charity shows.

In 2014, she started to produce the Breast Cancer Cure (BCC) Fashion for a Cure shows and says she loved working in this space and with this charity.

“In 2021, I was appointed as BCC CEO heading a team of five and working with an incredible volunteer board and ambassador­s, generous sponsors, committed patrons, amazing fashion designers, breast cancer researcher­s, and our volunteers.

Now in its 27th year, the organisati­on receives no government support.

de Mari says they view themselves as an entreprene­urial charity, funding innovative research by partnering and collaborat­ing with corporates.

“BCC works with scientists, researcher­s and clinicians across seven NZ universiti­es and 21 internatio­nal institutes. BCC’s innovative research focus includes greater precision in prevention, detection, diagnosis and treatment.

“We want cures and better quality of life for everyone affected by breast cancer.”

Fashion for a Cure is a tour de force, with dozens of NZ designers showcasing their collection­s at the BCC events throughout the country each year. Many of those designers take part in the Tees for a Cure campaign, which go on sale every April as well as during Breast Cancer Awareness month in October.

The original BCC Patron was Dame Trelise Cooper, who held this position for 10 years. Cooper and her team have continued their support and collaborat­ed with BCC for decades. Other long-term ambassador­s include designer Karen

Walker, broadcaste­r Petra Bagust and actor Antonia Prebble.

Last year, the new initiative, Dine For a Cure, conceived with Michelin Star chefs Matt Lambert and Josh Emett, was held in Queenstown and Auckland, and last week, BCC held its first Conversati­on for a Cure at the Auckland Art Gallery.

Both women were disappoint­ed at this year’s cancellati­on of NZFW and for all those affected but look forward to it being back in full force next year.

 ?? ??
 ?? Photo / Babiche Martens ?? Dame Pieter Stewart.
Photo / Babiche Martens Dame Pieter Stewart.
 ?? ?? Sonja de Mari.
Sonja de Mari.

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