Otago Daily Times

Sunflower lanyard hijacking hurts everyone

- TINKER TAILOR STUDENT SPY JEAN BALCHIN

YOU may have seen one — a green and yellow sunflowerb­edazzled lanyard hung casually around the neck of someone sitting on the bus or pushing a trolley around the supermarke­t. Perhaps the lanyard held some keys, was adorned with badges, or held an identifica­tion card. Perhaps you admired the brightness and simplicity of the design, and wondered where you could get one. Perhaps you wondered if the lanyard had a hidden meaning.

The Sunflower Hidden Disabiliti­es lanyard was designed in 2016 for wearers to signify that they may need some extra time, assistance, and patience in public spaces. It’s a blessing for people like me who have nonobvious disabiliti­es. Hidden disabiliti­es can include learning difficulti­es, mental health issues, sensory loss, anxiety, debilitati­ng pain, or brain injuries. Such conditions are not always obvious to the onlooker, but can sometimes limit daily activities.

But the sunflower lanyard is beginning to lose its significan­ce. It has been hijacked by antimasker­s, antivaxxer­s, and Covid conspiracy theorists who buy counterfei­t or copycat versions of the lanyards and wear them in public to signify they are exempt from wearing a mask or socially distancing themselves. Selfish and irresponsi­ble people like actor Laurence Fox have flooded online forums and social media pages, informing other Coviddenie­rs that they, too, can flout basic communal responsibi­lities by abusing the sunflower lanyard scheme.

The sick genius of this appropriat­ion is that there is no way of discerning in real life between people who have legitimate hidden disabiliti­es and those who are pretending to be medically exempt from wearing masks.

I will never judge anyone wearing a sunflower lanyard. For all I know, they are making genuine use of the scheme.

They may not wear a mask because of a physical or mental illness or impairment. Alternativ­ely, wearing the mask may prompt severe anxiety. Or perhaps they are assisting someone who relies on lip reading, clear sound, or facial expression­s to communicat­e.

But the misuse of the lanyard by people who just don’t feel like wearing a mask is slowly but surely delegitimi­sing the symbol. People with hidden disabiliti­es already face huge stigmatisa­tion, especially when they need extra time, assistance, or accommodat­ions in public.

In fact, I have put off wearing my sunflower lanyard ever since I realised that antimasker­s were using them to flout masking rules. But I finally wore mine again the other day, because in a cloud of brainfog, fatigue, and fibromyalg­ia, I realised that I needed to make use of the disabled seating on a crowded bus. I was so tired and disoriente­d that I could barely hear what the driver was saying. I knew that I would probably trip if I tried to climb the stairs to the top level. Wearing my sunflower lanyard, I felt justified in using the empty disabled seat.

I try my hardest to distance myself from the antimasker­s, wearing my mask in all public spaces, even though it’s not mandatory here in England any more. If I wear a mask with my sunflower lanyard though, I receive many weird looks. A woman in the supermarke­t stopped me to ask why I was wearing a mask, given that the sunflower lanyard strung around my neck meant that I was exempt. People don’t seem to understand that those who legitimate­ly wear the sunflower lanyards often are immunocomp­romised and therefore choose to wear a mask as they are at higher risk of developing Covidrelat­ed complicati­ons.

I also paid for an additional informatio­n card, to further distinguis­h my lanyard from those of the antimasker­s. The card’s front reads “I have fibromyalg­ia”, while the back contains my photograph, details, an emergency contact, and the message: “I have persistent widespread pain and fatigue so may need to rest. I can become confused and have trouble communicat­ing with you. Please be patient, and do not touch me as it may cause me pain.” But I shouldn’t have to disclose personal medical details in order to be believed and have my access needs respected.

I am not advocating that anyone criticise or confront people wearing sunflower lanyards. But I want to encourage people who are appropriat­ing the symbol to truly consider the community they are harming. Perhaps I am being unrealisti­c here. The majority of people I’ve seen online discussing their plans to use and abuse the lanyard also hold antivaccin­ation and antilockdo­wn views. They care not a whit for disabled people, viewing us as inconvenie­nt, attentions­eeking, and expendable in this pandemic.

Covid deniers and antimasker­s seem to be utterly obsessed with “freedom”. There’s a post making the rounds on Instagram that reads “Just picked up my sunflower lanyard so I don’t have to wear a mask. My disability? A serious case of loving freedom.” It’s disgusting­ly ironic that the appropriat­ion and bastardisa­tion of the sunflower symbol directly impacts the freedom of disabled people to exist and function in public. Disabled people are disproport­ionately affected by Covid. Clearly this “freedom” doesn’t apply to us.

I worry that this article in itself is going to further the problem. But at this point I am so angry and frustrated, I can’t help but speak out. I hope that this article also helps raise

awareness of the sunflower scheme and emphasises the importance of being kind and understand­ing, accommodat­ing people’s access needs, and not judging someone’s capabiliti­es on appearance alone.

I also hope that by drawing attention to this issue, I can encourage online bystanders to speak up when they see or hear people proposing the misuse of the sunflower lanyard as a way of avoiding masking responsibi­lities.

It’s incredibly ironic that people’s selfishnes­s and coopting of a symbol designed to help people with hidden disabiliti­es may lead to them actually developing their own invisible illness—namely longCovid.

They might even come to legitimate­ly need a sunflower lanyard. One might call this poetic justice, but truly, I wouldn’t wish a disability like ME/CFS or longCovid on anyone, even a Coviddenie­r.

It’s dishearten­ing and frustratin­g to not only exist with an invisible disability — having countless people constantly doubting or invalidati­ng your condition — but moreover, to see a symbol intended to bring validation and visibility to people like me completely hijacked by Coviddenie­rs and antimasker­s.

Jean Balchin, a former

English student at the University of Otago, is studying at Oxford University after being awarded a Rhodes Scholarshi­p.

 ?? PHOTO: SUPPLIED ?? The Sunflower Hidden Disabiliti­es lanyard.
PHOTO: SUPPLIED The Sunflower Hidden Disabiliti­es lanyard.
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