LET­TERS TO THE EDI­TOR

Stratford Press - - News -

An open let­ter to all who sup­ported the Kiser fam­ily in their trip to Amer­ica: At­tend­ing the con­fer­ence in Amer­ica gave us the op­por­tu­nity to meet other fam­i­lies liv­ing with the same con­di­tions and gave us some very valu­able per­sonal con­nec­tions. It also equipped us with bet­ter knowl­edge and un­der­stand­ing so that we can man­age Lu­cas go­ing for­ward and help other fam­i­lies in New Zealand.

With the rar­ity of this syn­drome in New Zealand, the spe­cial­ists are also learn­ing about the con­di­tion with us. They quite of­ten re­fer to case stud­ies found and dis­cuss his case with spe­cial­ists world-wide. It was hugely sig­nif­i­cant for us hear­ing these doc­tors speak­ing at the con­fer­ence, real-life sto­ries to be heard and in­tro­duced Lu­cas to some of the doc­tors who are al­ready fa­mil­iar with his case.

We could have not ex­pe­ri­enced this with­out all of you.

Thank you so much to Team Hope for their con­tri­bu­tion to­wards our air­fares and the Dis­ney­land tick­ets. This sure was ex­tremely over­whelm­ing to re­ceive and please know that we ab­so­lutely loved ev­ery minute of Dis­ney­land and were so grate­ful for the op­por­tu­nity to do this as a fam­ily. We are so lucky to have a lo­cal char­ity like your­selves with the fam­i­lies you help and all the work you do is truly in­spi­ra­tional.

Thank you to Fran­cis Dou­glas Memo­rial Col­lege for hold­ing an Auc­tion Char­ity night. This night was just so fan­tas­tic! We are so grate­ful for all the ef­fort from every­one at FDMC and the com­mu­nity to make this hap­pen. Thank you to FDMC for all your ef­forts, Peter McDon­ald and Patty (Patrick) Gower. I know this was a huge job for you all and you should be so proud of your­selves for mak­ing it such an in­cred­i­ble, suc­cess­ful, mem­o­rable even­ing, Thank you to every­one who at­tended, do­nated raf­fles and auc­tion items for the night. Please know how ex­tremely hum­bled and ap­pre­cia­tive our fam­ily is for the phe­nom­e­nal do­na­tion.

Thank you to Lit­tle Fight­ers Trust for your con­tri­bu­tion. Please know how gen­er­ous this was and a real credit to you and all the work you do for fam­i­lies in the com­mu­nity.

Thank you to the Strat­ford Press and other me­dia for al­low­ing us to share our sto­ries to the com­mu­nity.

Thank you to our sis­ters Heather McDon­ald and Michelle Kiser for set­ting up a give a lit­tle page and for every­one who con­trib­uted to­wards this.

To fam­ily, friends, schools, clubs, busi­nesses and even strangers, and each and ev­ery one of you in the com­mu­nity we could not be on this jour­ney with Lu­cas with­out you. The love, sup­port, thoughts and do­na­tions have been just so kind and so hum­bling and we sure are so lucky and priv­i­leged to be liv­ing in a com­mu­nity with you all. From the bot­tom of our hearts. MICHAEL, SO­NIA, LU­CAS AND AN­DRE KISER

Eltham Read­ing the story about the Kai Kitchen feed­ing hun­gry chil­dren in Strat­ford raised some ques­tions for me.

How is it, that in a coun­try where we have a ben­e­fit sys­tem, we have so­cial ser­vices and health care, do we still have chil­dren go­ing with­out?

The an­swer seems to be pri­or­i­ties. As I shop in the su­per­mar­ket, I see women with chil­dren putting cig­a­rettes, beer and then even a Lotto ticket in their shop­ping and very lit­tle fruit or veg­eta­bles.

Peo­ple say food is ex­pen­sive, but bread for sand­wiches is a dol­lar, a few loaves of that, add an ap­ple or a ba­nana and you can feed your chil­dren enough for a lunch. They don’t need pack­aged muesli bars, chips, yo­ghurts or cans of drink, they have wa­ter foun­tains at school k and a sand­wich and some fruit will tide them through the day. One less packet of cig­a­rettes and a few more ba­sic items in your shop­ping and you don’t need to put your hand out or let your chil­dren go hun­gry. M SAN­DERS

Newspapers in English

Newspapers from New Zealand

© PressReader. All rights reserved.