Tot’s tumour a rare cancer
2yo in induced coma as doctors work to get her strong enough for treatment
You learn to appreciate everything when your life has been flipped upside down. Riss Beckham
A2-year-old girl with a brain tumour the size of an adult fist has been diagnosed with a rare cancer. Daisy Nicholls’ parents Riss Beckham and Ray Nicholls said tests this week showed their “little fighter” has a rare neuroblastoma that originates from the neural crest cells within the central nervous system.
The large tumour pressing on Daisy’s brain stem was only discovered when she fell from a swing at daycare and hit her head on March 12.
The tumour caused a brain bleed — the Whangārei toddler lost consciousness and was rushed to hospital.
Since then Daisy has been in an induced coma at Starship children’s hospital with her parents by her side.
“We are getting a lot of support and we are just going to do all we can for our little girl,” Riss told NZME.
“You learn to appreciate everything when your life has been flipped upside down.”
Riss said the family were “drawing on all the inner strength” they could to endure the days as doctors worked to get Daisy well enough for treatment: “At the moment it is early days and Daisy is too unwell . . . they are trying to get her fit enough.”
Riss said progress had included Daisy’s breathing tube and catheter both being removed this week.
“Daisy is still sedated but she is breathing by herself and has been opening her eyes and looking around.
“As the days go by and they reduce her sedation we will know more about what she is capable of.”
The family said they were getting a lot of support and Riss had signed up to a neuroblastoma support group to talk with parents experiencing the same thing.
Family friends had set up a Givealittle page to help with the mortgage while Riss and Ray were off work, and future treatments for Daisy.
“We know it is going to be a very long road and we are so grateful for the support,” Riss said.
Riss and Ray have three other children and look forward to being reunited with them in Auckland this weekend.
They had been away from home, their children and pets in Whangārei since Daisy’s fall two weeks ago.
“It is our big boy’s 10th birthday on Friday and Daisy’s third birthday on Tuesday so we are looking at spending some quality time with them away from the hospital,” Riss said.
Riss and Ray said they wanted to see their girl back to her cheeky and strong-willed ways.
“We know this is the hand we have been dealt and we just have to be strong and do everything we can for Daisy and our family at this time.”