HGH Rheumatology Division raises awareness of lupus
HAMAD eneral Hospital’s H H Rheumatology division, led by its Chair Dr Samar Al Emadi, is highlighting orld upus Day, which falls on May 10, and is also creating awareness of the chronic autoimmune disease throughout the month of May, to mark orld upus Awareness Month.
Systemic lupus erythematosus is an autoimmune disease that can affect virtually any organ of the body. People with lupus can experience significant symptoms, such as skin rash, joints pain, extreme fatigue, hair loss, cognitive issues and physical impairments that affect every facet of their lives.
The Rheumatology division is organising a number of activities, including an awareness booth at Hamad eneral Hospital’s main building from May 10 to 12 between 8am and 1pm daily to offer hospital visitors information about the disease, its manifestations, diagnosis, prevention of complications and treatments.
The event, being held under the theme Make upus isible’, will also serve as an opportunity to raise awareness of healthcare workers across different sub-specialties and increase their clinical knowledge of the disease and how to best support affected patients and their families.
Since 2004, lupus organisations around the globe conducted activities on May 10 to raise awareness and educate the public about the symptoms and health effects of lupus. Together, they hope to make lupus an international health priority and ensure that people with lupus around the world are diagnosed and treated effectively.
upus could be an invisible illness because someone with lupus can appear healthy despite battling many internal issues, such as debilitating joint pain, skin rashes, overwhelming fatigue, blood disorders and more, Dr Emadi said.
She explained further that lupus is a chronic autoimmune disease that ravages different parts of the body and no two cases of lupus are alike.
The disease can impact any organ or tissue, from the skin or joints to the heart or kidneys. upus usually develops between ages 15 and 44 and it lasts a lifetime. upus can strike anyone, but 90 percent of the people living with lupus are females. Men, children and teenagers develop lupus too, she stated.
According to her, while the causes of lupus are unknown, scientists believe hormones, genetics heredity and environmental factors are involved, adding that more research is needed to better understand the role of these factors in people with lupus. ut two leading causes of serious illness and death from lupus are kidney disease and heart disease.
Dr Emadi added, upus can be difficult to diagnose and can be expensive to live with and treat. Its symptoms mimic those of other diseases, vary in intensity and can come and go over time.
This is why early diagnosis is crucial to preventing long-term consequences of the disease. If you notice signs or symptoms of lupus, be sure to engage your doctor and ask questions.
She added that because of its invisible nature, it is very important to create awareness of lupus to make it visible to align with the theme of this year’s awareness campaign.
upus is a mysterious disease that may be difficult to diagnose or treat. This is the reason we are raising awareness among the public and health care workers for early diagnosis and treatment, if not prevention. So, I will urge anyone who is experiencing any of the mentioned symptoms to get a referral to see a specialist for early diagnosis and treatment, Dr Emadi said.
orld upus Day serves as an opportunity to call attention to the impact that lupus has on people around the world. It is to bring greater attention and resources to efforts to end the suffering caused by this disabling and potentially fatal autoimmune disease.
The annual observance also focuses on the need for improved patient healthcare services, increased research into the causes of and cure for lupus, earlier diagnosis and treatment of lupus, and better epidemiological data on lupus globally, she added.