Much-loved progeria girl dies aged 18
Ontlametse’s death comes soon after she paid Zuma a courtesy visit
SOUTH AFRICA’S much loved “special child”, Ontlametse Phalatse, has died. Deputy Minister of Social Development Hendrietta Bogopane-Zulu broke the sad news of Ontlametse’s death on social media.
“It is with great sadness that we announce the passing of Ontlametse Phalatse. May her great spirit rest in eternal peace,” Bogopane-Zulu wrote.
Ontlametse was one of two South African young women living with progeria, a rare genetic disorder in which symptoms resembling aspects of ageing are manifested at a very early age.
Doctors did not think Ontlemetse would live to see her 14th birthday, but last month she turned 18 after having finished matric. A statement posted on Ontlametse’s Facebook page said Ontlametse died at George Mukhari Academic Hospital in Ga-Rankuwa, Pretoria, on Tuesday.
“It is with great sadness to inform you of the passing of our first lady, Ontlametse Ntlami Phalatse. She experienced breathing difficulties yesterday and was rushed to Hebron Clinic, then was transferred to Dr George Mukhari.”
The statement said funeral arrangements would be announced during the week.
Ontlametse’s goal was to be a life coach and motivational speaker. Last month she paid a courtesy call on President Jacob Zuma at his Mahlamba Ndlopfu residence in Pretoria as part of her “bucket list”: she wanted to meet the president before her 18th birthday, which was on Saturday, March 25.
“She is indeed a very special guest and I’m pleased to have met her. She’s very sharp and articulate. We have discussed many things relating to her rare genetic disorder and undertaken to assist her in some of the wishes she has related to me,” Zuma said.
He described meeting Ontlametse as a “very special and a great honour”.
Ontametse described meeting Zuma as the highest honour and a fulfilment of one of her wishes, describing him as “warm, kind and easy to talk to”.
Zuma committed to building Ontlametse’s family a home and provide her with transport for her special needs as well as improved medical care.
Zuma also presented her with a birthday cake and a bouquet of flowers.
Ontlametse’s death has evoked an outpouring of emotional tributes on social media. – ANA