Sunday Times (Sri Lanka)

Tranquil paintings that will help children with cancer

- By Ramya Chamalie Jirasinghe (Ramya Chamalie Jirasinghe is a poet and Deputy Director of the US-Sri Lanka Fulbright Commission)

The six-month-old baby boy from Monaragala, a cancer patient, has been prescribed a few rounds of chemothera­py by one of the paediatric oncologist­s at a leading cancer treatment centre. Each round of treatment lasts a few days. He weighs only 4.9 kgs, having lost weight since his diagnosis.

His veins have collapsed. The nurses are desperatel­y trying to find a vein to transfuse the chemo drugs. Even these highly skilled and experience­d nurses of the hospital cannot insert the canula needle into a vein. The little one is screaming in pain. After many attempts, he has to be taken into the theatre where the canula will be inserted by a surgical procedure.

A chemothera­py port could have prevented his trauma. A chemothera­py port is a small disk made out of plastic or metal, the size of a coin that can be inserted under the skin of a cancer patient. The port is connected to a vein through a tube and the medicine can be injected into the vein through the port.

Chemothera­py ports are expensive; not everyone can afford them. Dr. Samadhi Rajapaksa who had witnessed numerous children in pain when a canula is inserted into them for treatment, had decided that something needed to be done. The founder of the Cancer Care Associatio­n (CCA) that assists cancer patients with medicine and care through hospitals, hospices and community outreach, Dr. Rajapaksa has initiated the AUBO children’s chemothera­py port project.

Through the AUBO project, the CCA has begun donating ports for children with cancer. Each port can mean less trauma for a child, save him from repeated pain, extend his life span or help lead to remission, as it can ensure uninterrup­ted treatment. The CCA’s current target is to donate two ports every month and it needs a minimum of Rs 120,000 for this.

A child will not need to be pricked and subjected to pain during treatment if he has a chemothera­py port. It would ensure that medicine could be given to him during emergencie­s, immediatel­y through the port. A port can be kept in the body for the duration it is needed. This can be kept throughout the treatment sessions with proper maintenanc­e.

In resource-rich countries, each cancer patient who is prescribed chemothera­py is assessed and given a port if necessary by the port team.

CCA dreams of achieving that facility at least for children with cancer in Sri Lanka.

Artist Nisansala Karunaratn­e-Rajapaksa, holds a bachelor of fine arts from California State University in the USA, and MA in Buddhist Studies from Kelaniya University. As Dr Rajapaksa’s wife who has been devoted to helping him in the work of the CCA, she will donate all the money from the sale of her paintings to the AUBO project.

“The AUBO project is about trying to save a life,” says Nisansala. “As an artist I want to create works of art that will give peace and tranquilit­y to people. People’s lives are full of stress and harassment and I don’t want to add to that. And I felt that a fundraiser for the AUBO project through my paintings will complement the objec- tives of both,” she adds.

Nisansala leafs through a folio of her paintings as she speaks. Her “Ganga” reminds me of a Turner painting: She explains, “I painted this after a boat ride on Ganges in Varanasi early in the morning, even before dawn. We watched the lights of a Hindu temple light up the river banks as people bathed, washed their clothes and floated out bodies that were being cremated.”

A moored empty boat lies on the foreground of the painting, dragged on to the steps on the river bank, by a boatman yet to arrive. It first directs us towards the brilliant lighting of the temple and then towards the dark, far distance of the river.

In the painting titled “Inle Lake”, Nisansala takes us once again on a boat journey in Inle Lake in Myanmar before dawn. The stillness of the lake is palpable and the angle of the viewer’s vision of the lake, draws the eye forward, through the still water, just as if we too were on the boat, gliding towards the passenger’s destinatio­n. In both paintings, Nisansala shows a mastery at balancing realism and impression­ism to produce a painting that is neither.

In complete contrast, “Rata” and “Arise” are abstract and stylized renditions of patterns and the impact of the sun. “Arise was inspired by a visit to Wilpattu,” says Nisansala, “it shows the sun not as a real object but as a surreal source of light shining over the forest below. I normally paint in my studio, so I paint from memory and the feeling that I brought away from that moment.” In “Untitled” rectangles of colour in different, complexly shaded tones surround a gray-white space with an unblemishe­d centre.

While Nisansala is an artist and also the founder of Casa Serena, the gallery that exhibited paintings of local and internatio­nal artists, her day is consumed by her work at the CCA. Founded by Nisansala’s husband, Dr. Samadhi Rajapaksa in 2003 with the support of Consultant Clinical Oncologist Dr.Upul Ekanayake as a small organizati­on in the Anuradhapu­ra district, the CCA now has a range of projects that aim to help cancer patients supporting their financial, social and spiritual needs, working closely with the government cancer hospitals in Maharagama, Anuradhapu­ra and Karapitiya.

The CCA also runs a hospice in Anuradhapu­ra and will be opening another in Matara. Its projects include a daily free lunch project for patients and carers who attend the clinics at the Maharagama hospital. There is a free medication project, breast prosthesis project, financial aids, “Pibidena Kekulu” scholarshi­p project, and “a donate Rs. 5 per day” project.

The CCA’s homebased palliative care project deploys a group of dedicated staff who visit homes of families that wish to keep loved ones in the terminal stages of cancer without sending them to a hospice. The staff guide the family members on nursing care techniques, assist them with their financial needs and provide medicine, especially for pain management, and in many cases support the family through their period of grieving when their loved one dies.

“From the time I met my husband I have been helping him,” Nisansala says. “I make sure that when a donor gives money for a particular project that we use it only for that project. We are trying not to make this associatio­n heavy on administra­tion costs. Because that means the funds that we get for patients will be wasted. So we try to do as much as we can ourselves and through volunteers or really dedicated staff.

Nisansala says, “For example, the lady who cooks the food for the free meal per day project has experience­d the burden of cancer. She is completely dedicated to what she does. She buys the ingredient­s, cooks the food, takes it to the hospital, serves it and then brings the utensils back every day. We pay her a nominal stipend, but we know that her dedication to the project cannot be measured.”

Going back to her work, Nisansala mentions that her work is held in collection­s outside Sri Lanka, including that of the Padmanabad­asa Uttaranand­a Maratanda Varma Maharaja of Travancore. “If I sell all the paintings, we will have enough funds for chemothera­py ports for at least 24 children with cancer,” she smiles.

Nisansala’s exhibition will be on at the Lionel Wendt, on June 2 and 3.

To donate to the CCA’s projects visit: https://cancercare­sl.com/

 ??  ?? Light and dark: Two of Nisansala Karunaratn­e Rajapaksa’s paintings and below, the artist with a cause
Light and dark: Two of Nisansala Karunaratn­e Rajapaksa’s paintings and below, the artist with a cause
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